Dependência crônica de ventilação pulmonar mecânica na assistência pediátrica: um debate necessário para o SUS
Chronic dependence on mechanical pulmonary ventilation in pediatric care: a necessary debate for Brazil's Unified Health System
dc.creator | Costa, Maria Tereza Fonseca da | |
dc.creator | Gomes, Maria Auxiliadora de Sousa Mendes | |
dc.creator | Pinto, Márcia | |
dc.date | 2012-12-17T16:50:37Z | |
dc.date | 2012-12-17T16:50:37Z | |
dc.date | 2011 | |
dc.date.accessioned | 2023-09-26T21:12:30Z | |
dc.date.available | 2023-09-26T21:12:30Z | |
dc.identifier | COSTA, Maria Tereza Fonseca da Costa; GOMES, Maria Auxiliadora; PINTO, Márcia. Dependência crônica de ventilação pulmonar mecânica na assistência pediátrica: um debate necessário para o SUS. Ciênc. saúde coletiva, Rio de Janeiro, v. 16, n. 10, p. 4147-4169, 2011. | |
dc.identifier | 1413-8123 | |
dc.identifier | https://www.arca.fiocruz.br/handle/icict/6015 | |
dc.identifier | 10.1590/S1413-81232011001100020 | |
dc.identifier.uri | https://repositorioslatinoamericanos.uchile.cl/handle/2250/8870843 | |
dc.description | Pessoas com dependência prolongada de ventilação pulmonar mecânica necessitam de cuidados permanentes e de equipamentos, que podem alongar muito a permanência hospitalar, determinando uma dificuldade de acesso para pacientes com agravos agudos, assim como transtornos pessoais com limitação da qualidade de vida de seus familiares ou cuidadores, devido aos longos períodos de internação. Esta revisão crítica de publicações sobre dependência de ventilação pulmonar mecânica em crianças e adolescentes objetivou disponibilizar informações organizadas de modo sistemático, a fim de subsidiar o debate sobre o tema, considerando que as mudanças de perfil epidemiológico e o crescente acesso tecnológico determinam necessidades como leitos de terapia intensiva e complexa assistência domiciliar para pacientes crônicos, ainda com limites de oferta e regulação no sistema público de saúde brasileiro. | |
dc.description | People with prolonged dependence on mechanical ventilation require permanent care and the use of equipment that can result in longer term hospital internment. This can lead to difficulty of access for patients with acute injuries, as well as personal difficulties and stress with reduced quality of life for their families or caregivers due to such longer hospital internment. This critical review of publications dealing with dependence on mechanical ventilation among children and adolescents aimed at making information organized in a systematic manner available in order to support discussion on the subject. It should be borne in mind that changes in epidemiological profile and growing technological access determine needs such as intensive therapy hospital beds and complex home care for chronic patients, which still have limits of supply and regulatory restrictions in the Brazilian public health system. | |
dc.format | application/pdf | |
dc.language | por | |
dc.publisher | Associação Brasileira de Saúde Coletiva | |
dc.relation | Office of Technology Assessment. Assessing the Efficacy and Safety of Medical Technologies [monografia]. Washington, D.C: Government Printing Office; 1978. [acessado 2010 jun 03]. Disponível em: http:/ /govinfo.library.unt.edu/ota/ota_5/DAta/1978/7805 | |
dc.relation | Brasil. Portaria nº 2510 de 19 de Dezembro de 2005. Institui Comissão para Elaboração da política de Gestão Tecnológica no âmbito do SUS. Diário Oficial da União 2005; 19 dez. | |
dc.relation | Schramm JM, Oliveira AF, Leite IC, Valente JG, Gadelha AJ, Margareth CP, Campos MR. Transição epidemiológica e o estudo de carga de doença no Brasil. Cien Saude Colet 2004; 9(4):897-908. | |
dc.relation | Instituto Nacional de Câncer (INCA). Coordenação de Prevenção e Vigilância de Câncer. Câncer da criança e adolescente no Brasil: dados dos registros de base populacional e de mortalidade. Rio de Janeiro: INCA; 2008. | |
dc.relation | Wise PH. The future pediatrician: the challenge of chronic illness. J Pediatric 2007; 151(Supl. 5):S6-S10. | |
dc.relation | Feudtner C, Hays RM, Haynes G, Geyer JR, Neff JM, Koepsell TD. Deaths attributed to pediatrics complex chronic conditions: national trends and implications for supportive care services. Pediatrics 2001; 107(6):E99. | |
dc.relation | Van Dyck PC, Kogan MD, McPherson MG, Weissman GR, Newacheck PW. Prevalence and characteristics of children with special health care needs. Arch Pediatr Adolesc Med 2004; 158(9):884-890. | |
dc.relation | Office of Technology Assessment . Technology-Dependent Children: hospital v. Home Care: a technical memorandum [monografia]. Washington. D.C: Government Printing Office; 1987. [acessado 2009 dez 22]. Disponível em: http://govinfo.library. unt.edu/ota/Ota-3/data/1987/8728.pdf | |
dc.relation | Palfrey JS, Haynie M, Porter S, Fenton T, Coperman- Vincent P, Shaw D, Johnson B, Bierle T, Walker DK. Prevalence of medical technology assistance among children in assachusettsand in 1987 and 1990. Public Health Rep 1994; 109(2):226-233. | |
dc.relation | Jardine E, O’Toole M, Paton JY, Wallis C. Current status of long term ventilation of children in the United Kingdom: questionnaire survey. BMJ 1999; 318(7179):295-299. | |
dc.relation | Fauroux B, Boffa C, Desguerre I, Estournet B, Trang H. Long-term noninvasive mechanical ventilation for children at home: a national survey. Pediatr Pulmonol 2003; 35(2):119-125. | |
dc.relation | Barbosa AP, Cunha AJLA, Carvalho ERM, Portela AF, Andrade MF, Barbosa MCM. Terapia intensiva neonatal e pediátrica no Rio de Janeiro: distribuição de leitos e análise de equidade. AMB Rev Assoc Med Bras 2002; 48(4):303-311. | |
dc.relation | Souza DC, Troster EJ, Carvalho WB, Shin SH, Cordeiro AMG. Disponibilidade de unidades de terapia intensiva pediátrica e neonatal no município de São Paulo. J Pediatr (Rio J) 2004; 80(6):453-460. | |
dc.relation | Fraser J, Mok Q, Tasker R. Survey of occupancy of paediatric intensive care units by children who are dependent on ventilators. BMJ. 1997; 315(7104):347- 348. | |
dc.relation | Brasil. Portaria n.º 2.529 de 19 de Outubro de 2006. Institui a Internação Domiciliar no âmbito do SUS. Diário Oficial da União 2006; 20 out. | |
dc.relation | Pilmer SL | |
dc.relation | Traiber C, Piva JP, Fritssher CC, Garcia PC, Lago PM, Trotta EA, Ricachinevsky CP, Bueno FU, Baecker V, Lisboa BD. Profile and consequences of children requiring prolonged mechanical ventilation in three brazilian pediatric intensive care units. Pediatr Crit Care Med 2009; 10(3):375-380. | |
dc.relation | Goldberg AI, Faure EA, Vaughn CJ, Snarski R, Seleny FL. Home care for life-supported persons: an approach to program development. J Pediatr 1984; 104(5):785-795. | |
dc.relation | Frates RC Jr, Splaingard ML, Smith EO, Harrison GM. Outcome of home mechanical ventilation in children. J Pediatr 1985; 106(5): 850-856. | |
dc.relation | Schreiner MS, Donar ME, Kettrick RG. Pediatric home mechanical ventilation. Pediatr Clin North Am 1987; 34(1):47-60. | |
dc.relation | Schreiner MS, Downes JJ, Kettrick RG, Ise C, Voit R. Chronic respiratory failure in infants with prolonged ventilator dependency. JAMA 1987; 258(23): 3398-3404. | |
dc.relation | Hazlett DE. A study of pediatric home ventilator management: medical, psychosocial and financial aspects. J Pediatr Nurs 1989; 4(4):284-294. | |
dc.relation | Gilgoff IS, Kahlstrom E, MacLaughlin E, Keens TG. Long term ventilator support in spinal muscular atrophy. J Pediatr 1989; 115(6):904-909. | |
dc.relation | Gillis J, James Tibbals, McEnier J, Heavens J, Hutchins P, Kilhan HA, Henning R. Ventilator dependent children. Med J Aust 1989; 150(1):10-14. | |
dc.relation | Fields Al, Coble DH, Pollack MM, Kaufman J. Outcome of home care for technology dependent children: success of an independent, community based case management model. Pediatr Pulmonol 1991; 11(4):310-317. | |
dc.relation | Marcus CL, Jansen MT, Poulsen MK, Keens SE, Nield TA, Lipsker LE, Keens TG. Medical and psychosocial outcome of children with congenital central hypoventilation syndrome. J Pediatr 1991; 119(6):888-895. | |
dc.relation | DeWitt PK, Jansen MT, Ward SL, Keens TG. Obstacles to discharge of ventilator-assisted children from the hospital to home. Chest 1993; 103(5):1560-1565. | |
dc.relation | Canlas-Yamsuan M, Sanchez I, Kesselman M, Chernick V. Morbidity and mortality patterns of ventilator- dependent children in a home care program. Clin Pediatr (Phila) 1993; 32(12):706-713. | |
dc.relation | Baraldi E, Carra S, Vencatto F, Filippone M, Trevisanuto D, Milanesi O, Pinello M, Zanardo V, Zacchello F. Home oxygen therapy in infants with bronchopulmonary dysplasia: a prospective study. Eur J Pediatr 1997; 156(11):878-882. | |
dc.relation | Ambrosio IU, Woo MS, Jansen MT, Keens TG. Safety of hospitalized ventilator dependent children outside of the intensive care. Pediatrics 1998; 101(2): 257-259. | |
dc.relation | Resener TD, Martinez FE, Reiter K, Nicolai T. Assistência ventilatória domiciliar em crianças: descrição de um programa. J Pediatr 2001; 77(2):84-88. | |
dc.relation | Mocelin HT, Fisher GB, Ranzi LC, Rosa RD, Philomena MR. Oxigenioterapia domiciliary em crianças: relato de sete anos de experiência. J Bras Pneumol 2001; 27(3):148-152. | |
dc.relation | O’Brien JE, Dumas HM, Haley SM, O’Neil ME, Renn M, Bartolacci TE, Kharasch V.. Clinical findings and resource use of infants and toddlers dependent on oxygen and ventilators. Clin Pediatr (Phila) 2002; 41(3):155-162. | |
dc.relation | Gilgoff RL, Gilgoff IS. Long-term follow-up of home mechanical ventilation in young children with spinal cord injury and neuromuscular conditions. J Pediatr 2003; 142(5):476-480. | |
dc.relation | Bertrand P, Fehlmann E, Lizama M, Holmgren N, Silva M, Sanchez I. Home ventilatory assistance in Chilean children: 12 years’ experience. Arch Bronconeumol 2006; 42(4):165-170. | |
dc.relation | Ottonello G, Ferrari I, Pirroddi IM, Diana MC, Villa G, Nahum L, Tuo P, Moscatelli A, Silvestri G. Home mechanical ventilation in children: retrospective survey of a pediatric population. Pediatr Int 2007; 49(6):801-805. | |
dc.relation | Oktem S, Ersu R, Uyan ZS, Cakir E, Karakoc F, Karadag B, Kiyan G, Dagli E. Home ventilation for children with chronic respiratory failure in Istanbul. Respiration 2008; 76(1):76-81. | |
dc.relation | Robinson RO. Ventilator dependency in the United Kingdom. Arch Dis Child 1990; 65(11):1235-1236. | |
dc.relation | Gowans M, Keenan HT, Bratton SL. The population prevalence of children receiving invasive home ventilation in Utah. Pediatr Pulmonol 2007; 42(3): 231-236. | |
dc.relation | Taylor JH. Children who require long term: staff education and training. Intensive Crit Care Nurs 2004; 20(2):93-102. | |
dc.relation | Teal DK, Cox TJ, Hertzog JH. Hospital discharge of respiratory technology dependent children: role a dedicated respiratoy care discharge coordinator. Respir Care 2006; 51(7):744-749. | |
dc.relation | Teal DK, Hertzog JH. Home discharge of technology dependent children: evaluation of a respiratory therapist driven family education program. Respir Care 2007; 52(2):171-176. | |
dc.relation | Noyes J, Hartmann H, Samuels M, Southall D. Experience and views of parents who care for ventilator dependent children. J Clin Nurs 1999; 8(4):440- 450. | |
dc.relation | Noyes J. Enabling young ventilator dependent people to express their views and experiences of their care en hospital. J Clin Nurs 2000; 31(5):1206-1215. | |
dc.relation | Noyes J. Barriers that delay children and young people who are dependent on mechanical ventilators from being discharged from hospital. J Clin Nurs 2002; 11(1):2-11. | |
dc.relation | Carnevale FA, Alexander E, Davis M, Rennick J, Troini R. Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Pediatrics 2006; 117(1):e48-60. | |
dc.relation | Noyes J. Health and quality of life of ventilator-dependent children. J Adv Nurs 2006; 56(4):392-403. | |
dc.relation | Noyes J. Comparasition of ventilator dependent child reports of heath related quality of life with parents reports and normative populations. J Adv Nurs 2007; 58(1):1-10. | |
dc.relation | Drucker LP. Rede de suporte tecnológico à criança dependente de tecnologia egressa de um hospital de saúde pública. Cien Saude Colet 2007; 12(5):1285- 1284. | |
dc.relation | Sarvey SI. Living with a machine: the experience of the child who is ventilator dependent. Issues Ment Health Nurs 2008; 29(2):179-196. | |
dc.relation | Wang K W, Barnard A. Caregivers’ experiences at home with a ventilator-dependent child. Qual Health Res 2008; 18(4):501-508. | |
dc.relation | Whitford KM. Health care needs of ventilator dependent children. Pediatr Nurs 1988; 14(3):216-219. | |
dc.relation | Capen CL, Dedlow ER. Discharging Ventilator Dependent Children: a continuing challenge. J Pediatr Nurs 1998; 13(3):175-184. | |
dc.relation | Donar ME. Community care: pediatric home mechanical ventilation. Holist Nurs Pract 1988; 2(2):68- 80. | |
dc.relation | American Thoracic Society. Medical Section of American Lung Association. Home mechanical ventilation of pediatric patients. Am Rev Respir Dis 1990; 141(1)258-259. | |
dc.relation | Panitch HB, Downes JJ, Kennedy JS, Kolb SM, Parra MM, Peacock J, Thompson MC. Guidelines for home care of children with chronic respiratory insufficiency. Pediatr Pulmonol 1996; 21(1):52-56. | |
dc.relation | Jardine E, Wallis C. Core Guidelines for the child on long term assisted ventilation in the United Kingdom. Thorax 1998; 53:762-767. | |
dc.relation | Miller VL, Rice JC, DeVoe M, Fos PJ. An anlysis of program and family costs of case managed care for technology dependent infants with bronchopulmonary dysplasia. J Pediatr Nurs 1998; 13(4):244-251. | |
dc.relation | Noyes J. Resource use and service costs for ventilator- dependent children and yong people in the UK. Health and Social Care in the Community 2006; 14(6):508-522. | |
dc.relation | Fauroux B, Sardet A, Foret D. Home treatment for chronic respiratory failure in children: a prospective study. Eur Respir J 1995; 8(12):2062-2066. | |
dc.relation | Dhillon JS, Frewen TC, Singh NC, Speechley KN. Chronic mechanical ventilation dependent children in Canada. Paediatr Child Health 1996; 1(2):111-116. | |
dc.relation | Kamm M, Burger R, Rimensberger P, Knoblauch A, Hammer J. Survey of children supported by long term mechanical ventilation in Switzerland. Swiss Med Wkly 2001; 131(19-20):261-266. | |
dc.relation | While AE, Cockett AM, Lewis S. Children and young people requiring home assisted ventilation in the South of England: incidence, receipt of care support and components of the care package. Children & Society 2003; 18(3):207-217. | |
dc.relation | Lago PM, Devictor D, Piva JP, Bergounioux J. Endof- life in children: the Brazilian and the international perspectives. J Pediatr 2007; 83(Supl. 2):109-116. | |
dc.relation | Barbosa AP. Terapia intensiva Neonatal e pediátrica no Brasil: o ideal, o real e o possível. J pediatr 2004; 80(6):437-438. | |
dc.relation | Brasil. Portaria n.º 1531 de 04 de Setembro de 2001. Institui, no âmbito do Sistema Único de Saúde, o Programa de Assistência Ventilatória Não Invasiva a Pacientes Portadores de Distrofia Muscular Progressiva. Diário Oficial da União 2001; 4 set. | |
dc.rights | open access | |
dc.subject | Ventilação Mecânica | |
dc.subject | Tecnologia Médica | |
dc.subject | Dependência de Tecnologia | |
dc.subject | Ventilação Mecânica Crônica | |
dc.subject | Assistência Pediátrica | |
dc.subject | Mechanical Ventilation | |
dc.subject | Biomedical Technology | |
dc.subject | Dependence on Technology | |
dc.subject | Chronic Mechanical Ventilation | |
dc.subject | Assistência à Saúde | |
dc.subject | Fatores de Tempo | |
dc.subject | Respiração Artificial | |
dc.title | Dependência crônica de ventilação pulmonar mecânica na assistência pediátrica: um debate necessário para o SUS | |
dc.title | Chronic dependence on mechanical pulmonary ventilation in pediatric care: a necessary debate for Brazil's Unified Health System | |
dc.type | Article |