El hermano del niño con cáncer merece ser visible: Scoping Review;
O irmão da criança com câncer merece ser visível: Scoping Review

dc.creatorSantamaría Torres, Alexander
dc.creatorRozo Guzmán, Andrea Nataly
dc.creatorTrujillo Naranjo, María Camila
dc.creatorCarreño Moreno, Sonia Patricia
dc.date2022-06-21
dc.date2023-03-22T19:06:42Z
dc.date2023-03-22T19:06:42Z
dc.date.accessioned2023-09-06T17:36:54Z
dc.date.available2023-09-06T17:36:54Z
dc.identifierhttps://revistas.unimilitar.edu.co/index.php/rlbi/article/view/5436
dc.identifier10.18359/rlbi.5436
dc.identifierhttp://hdl.handle.net/10654/43451
dc.identifier.urihttps://repositorioslatinoamericanos.uchile.cl/handle/2250/8691756
dc.descriptionThe healthy brother in situations of childhood cancer is often an invisible individual for his family, for health professionals and institutions. The objective of this work was to map and integrate the scientific literature about the experience of the sibling of a child diagnosed with cancer. A Scoping Review of 28 articles published between 2016 and 2020, in Spanish, English and Portuguese, was developed. Twelve qualitative studies, 15 quantitative and one mixed study were included. Faced with the findings, it was identified that there are changes in the relationships between siblings, parental and social, in addition to personal changes and a limited offer of support to the siblings of the child with cancer. The conclusion drawn is that childhood cancer directly affects family members, including the healthy brother, who faces drastic changes in his life that imply new needs, feelings and risk behaviors. More research and a broader approach to the impact of childhood cancer on healthy siblings is required, as well as the design of interventions that highlight the need to make visible this individual who suffers the collateral damage of childhood cancer and who has been neglected by his family and health professionals.
dc.descriptionEl hermano sano en situaciones de cáncer infantil es con frecuencia un sujeto invisible para su familia, los profesionales de la salud y las instituciones. El objetivo de este trabajo fue mapear e integrar la literatura científica acerca de la experiencia del hermano del niño diagnosticado con cáncer. Se desarrolló una Scoping Review de 28 artículos publicados entre 2016 y 2020, en los idiomas español, inglés y portugués. Se incluyeron 12 estudios cualitativos, 15 cuantitativos y un estudio mixto. Frente a los hallazgos, se identificó que hay cambios en las relaciones entre hermanos, parentales y sociales, además de cambios personales y una oferta limitada de apoyo a los hermanos del niño con cáncer. Se concluye que el cáncer infantil afecta directamente a los miembros de la familia, incluido al hermano sano, quien enfrenta cambios drásticos en su vida que implican nuevas necesidades, sentimientos y conductas de riesgo. Se requiere una mayor investigación y abordaje acerca del impacto del cáncer infantil en hermanos sanos, así como el diseño de intervenciones que pongan de manifiesto la necesidad de hacer visible a este sujeto que sufre el daño colateral del cáncer infantil y que ha sido descuidado por su familia y por los profesionales en salud.
dc.descriptionO irmão saudável em situação de câncer infantil é muitas vezes um sujeito invisível para sua família, profissionais de saúde e instituições. O objetivo deste trabalho foi mapear e integrar a literatura científica sobre a vivência do irmão de uma criança diagnosticada com câncer. Foi desenvolvida uma Scoping Review de 28 artigos publicados entre 2016 e 2020, em espanhol, inglês e português. Doze estudos qualitativos, 15 quantitativos e um misto foram incluídos. Diante dos achados, identificou-se que há mudanças nas relações entre irmãos, parentais e sociais, além de mudanças pessoais e uma oferta limitada de apoio aos irmãos da criança com câncer. Conclui-se que o câncer infantil atinge diretamente os familiares, incluindo o irmão sadio, que enfrenta mudanças drásticas em sua vida que implicam novas necessidades, sentimentos e comportamentos de risco. São necessárias mais pesquisas e abordagem sobre o impacto do câncer infantil em irmãos saudáveis, bem como o desenho de intervenções que evidenciem a necessidade de visibilizar esse sujeito que sofre os danos colaterais do câncer infantil e que tem sido negligenciado por sua família e profissionais de saúde.
dc.formatapplication/pdf
dc.formattext/xml
dc.languagespa
dc.publisherUniversidad Militar Nueva Granada
dc.relationhttps://revistas.unimilitar.edu.co/index.php/rlbi/article/view/5436/5125
dc.relationhttps://revistas.unimilitar.edu.co/index.php/rlbi/article/view/5436/5306
dc.relation/*ref*/Bhakta N, Force LM, Allemani C, Atun R, Bray F, Coleman MP, et al. Childhood cancer burden: a review of global estimates. Lancet Oncol [Internet]. 2019 en.[citado 2020 abr. 12];20(1):42-53. DOI: http://doi.org/10.1016/s1470-2045(18)30761-7
dc.relation/*ref*/Global Cancer Observatory. Cancer Today [Internet]. Lyon: globocan 2020[fecha desconocida; citado 2020 my. 15]. Disponible en: https://gco.iarc.fr/today/home
dc.relation/*ref*/Allemani C, Matsuda T, Di Carlo V, Harewood R, Matz M, Nikšićet M, et al. Global surveillance of trends in cancer survival 2000-14 (concord-3): analysis of individual records for 37 513 025 patients diagnosed with one of 18 cancers from 322 population-based registries in 71 countries. Lancet [Internet]. 2018 en. 30[citado 2020 abr. 12]; 391(10125):1023-1075. DOI: http://doi.org/10.1016/s0140-6736(17)33326-3
dc.relation/*ref*/Bonaventure A, Harewood R, Stiller CA, Gatta G, Clavel J, Stefan DC, et al. Worldwide comparison of survival from childhood leukaemia for 1995-2009, by subtype, age, and sex (concord -2): a population-based study of individual data for 89828 children from 198 registries in 53 countries. Lancet Haematol [Internet]. 2017 abr. 11[citado 2020 abr. 12];4(5):202-217. DOI: http://doi.org/10.1016/S2352-3026(17)30052-2
dc.relation/*ref*/López J, Ortiz G, Noriega C. Crecimiento postraumático en padres de niños y adolescentes con cáncer. An Sist Sanit Navar [Internet]. 2019[citado 2020 abr. 12];42(3):325-337. DOI: https://doi.org/10.23938/ASSN.0717
dc.relation/*ref*/Carreño S, Chaparro L, Blanco P. Cuidador familiar del niño con cáncer: un rol en transición. Rev Lat Bioet [Internet]. 2017 my. 22[citado 2020 abr. 12];17(33-2):18-30. DOI:https://doi.org/10.18359/rlbi.2781
dc.relation/*ref*/Herrero S. Conceptualización de las necesidades de cuidado en los hermanos del niño con cáncer: una aproximación mediante el análisis de textos. Rev Ene [Internet]. 2016 dic.[citado 2020 my. 16];10(3). Disponible en: http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S1988-348X2016000300009
dc.relation/*ref*/Long KA, Lehmann V, Gerhardt CA, Carpenter AL, Marsland AL, Alderfer MA. Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review. Psycho-Oncol [Internet]. 2018 febr. 13[citado 2020 abr. 18];27(6):1467-1479. DOI: https://doi.org/10.1002/pon.4669
dc.relation/*ref*/Yang H, Mu P, Sheng C, Chen YW, Hung GY. A Systematic Review of the Experiences of Siblings of Children With Cancer. Canc Nur [Internet]. 2016[citado 2020 abr. 18];39(3):12-21. DOI: https://doi.org/10.1097/NCC.0000000000000258
dc.relation/*ref*/Franklin M, Patterson P, Allison KR, Rosso‐Buckton A, Walczak A. An invisible patient: Healthcare professionals’ perspectives on caring for adolescents and young adults who have a sibling with cancer. Eur J Canc Car [Internet]. 2018 nov. 20[citado 2020 abr. 18];27(6). DOI: https://doi.org/10.1111/ecc.12970
dc.relation/*ref*/Tasso M. Perspectiva Bioética en Oncología Infantil. Eidon [Internet]. 2013[citado 2020 abr. 18];(39):49-60. Disponible en: DOI: https://doi.org/10.13184/eidon.39.2013.49-60
dc.relation/*ref*/Chuck-Sepulveda JA. Bioética y el paciente pediátrico oncológico. Rev Sal Jal [Internet]. 2019[citado 2020 my. 16];6(2):131-134. Disponible en: https://www.medigraphic.com/pdfs/saljalisco/sj-2019/sj192j.pdf
dc.relation/*ref*/Carnaúba C, Biasoli L. Cruces, lagunas y desafíos entre bioética y oncología. Rev Bioet [Internet]. 2018[citado 2020 my. 16];26(3):451-462. DOI: https://doi.org/10.1590/1983-80422018263265
dc.relation/*ref*/Sucharew H, Macaluso, M. Methods for Research Evidence Synthesis: The Scoping Review Approach. J Hosp Med [Internet]. 2019 jun. 12[citado 2020 my. 16];14(7):416-418. DOI: https://doi.org/10.12788/jhm.3248
dc.relation/*ref*/Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (coreq): a 32-item checklist for interviews and focus groups. Inter J Qual Health Care [Internet]. 2007 sep. 14[citado 2020 my. 16];19(6):349-357. DOI: https://doi.org/10.1093/intqhc/mzm042
dc.relation/*ref*/Selçuk AA. A Guide for Systematic Reviews: prisma. Turk Arch Otorhinolaryngol [Internet]. 2019 mzo. 14[citado 2020 my. 16];57(1):57-58. DOI: https://doi.org/10.5152/tao.2019.4058
dc.relation/*ref*/Bara D. The Hidden Cost of Cancer: The Siblings’ Story, A Mother’s Narrative on How Three of Her Children Journeyed Through Their 14-Year-Old Sister’s 9-Month Journey From Ill Heath to Death and Beyond. Illness Crisis Loss [Internet]. 2018 feb. 18[citado 2020 jul. 10];29(1):19-36. DOI: https://doi.org/10.1177/1054137318755281
dc.relation/*ref*/Van Schoors M, De Mol J, Laeremans N, Verhofstadt LL, Goubert L, Van Parys H. Siblings’ Experiences of Everyday Life in a Family Where One Child Is Diagnosed With Blood Cancer: A Qualitative Study. J Pediatr Oncol Nurs [Internet]. 2018 dec. 18[citado 2020 jul. 10];36(2):131-142. DOI: https://doi.org/10.1177/1043454218818067
dc.relation/*ref*/Kaatsiz M, Öz F. I’m here, too: Being an adolescent sibling of a pediatric cancer patient in Turkey. J Pediatr Nurs [Internet]. 2019 oct. 22[citado 2020 jul. 10];51:E77-E84. DOI: https://doi.org/10.1016/j.pedn.2019.10.003
dc.relation/*ref*/Alderfer M, Logan BA, DiDonato S, Jackson L, Hayes MJ, Sigmon ST. Change Across Time in Cancer-Related Traumatic Stress Symptoms of Siblings of Children with Cancer: A Preliminary Investigation. J Clin Psychol Med Settings [Internet]. 2019 abr. 16[citado 2020 jul. 10];27(1):1-6. DOI: https://doi.org/10.1007/s10880-019-09618-2
dc.relation/*ref*/Barrera M, Atenafu E, Nathan PC, Schulte F, Hancock K. Depression and Quality of Life in Siblings of Children With Cancer After Group Intervention Participation: A Randomized Control Trial. J Pediatr Psychol [Internet]. 2018[citado 2020 jul. 10];43(10):1093-1103. DOI: https://doi.org/10.1093/jpepsy/jsy040
dc.relation/*ref*/Jo M, Hong S, Park H. Effects of Art Intervention Program for Siblings of Children With Cancer: A Pilot Study. J Pediatr Onc Nurs [Internet]. 2018 mzo. 2 [citado 2020 jul. 10];35(3):178-187. DOI: https://doi.org/10.1177/1043454218762702
dc.relation/*ref*/D’Urso A, Mastroyannopoulou K, Kirby A. Experiences of posttraumatic growth in siblings of children with cancer. Clin Child Psychol Psychiat [Internet]. 2017[citado 2020 jul. 10];22(2):301-317. DOI: https://doi.org/10.1177/1359104516660749
dc.relation/*ref*/Neville A, Hancock K, Rokeach A. The Emotional Experience and Perceived Changes in Siblings of Children With Cancer Reported During a Group Intervention. onf [Internet]. 2016[citado 2020 jul. 10];43(5):E188-E194. DOI: https://doi.org/10.1188/16.ONF.E188-E194
dc.relation/*ref*/Lövgren M, Bylund-Grenklo T, Jalmsell L, Wallin AE, Kreicbergs U. Bereaved Siblings’ Advice to Health Care Professionals Working With Children With Cancer and Their Families. J Pediatr Oncol Nurs [Internet]. 2015 dic. 14[citado 2020 jul. 10];33(4):297-305. DOI: https://doi.org/10.1177/1043454215616605
dc.relation/*ref*/Long KA, Pariseau EM, Muriel AC, Chu A, Kazak AE, Leon M, et al. Psychosocial screening for siblings of children with cancer: Barriers and preferences. Clin Pract Pediatr Psychol [Internet]. 2017[citado 2020 jul. 10];5(4):364-375. DOI: https://doi.org/10.1037/cpp0000219
dc.relation/*ref*/Barrera M, Neville A, Purdon L, Hancock K. “It’s Just for Us!” Perceived Benefits of Participation in a Group Intervention for Siblings of Children With Cancer. J Pediatr Psychol [Internet]. 2018 oct.[citado 2020 jul. 15];43(9):995-1003. DOI: https://doi.org/10.1093/jpepsy/jsy026
dc.relation/*ref*/Sjoberg I, Pole JD, Cassidy M, Boilard C, Costantini S, Johnston DL. The Impact of School Visits on Siblings of Children With Cancer. J Pediatr Oncol Nurs [Internet]. 2018[citado 2020 jul. 15];35(2):110-117. DOI: https://doi.org/10.1177/1043454217735897
dc.relation/*ref*/Tsimicalis A, Genest L, Stevens B, Ungar WJ, Barr R. The Impact of a Childhood Cancer Diagnosis on the Children and Siblings’ School Attendance, Performance, and Activities: A Qualitative Descriptive Study. J Pediatr Oncol Nurs [Internet]. 2017 dic. 1[citado 2020 jul. 15];35(2):118-31. DOI: https://doi.org/10.1177/1043454217741875
dc.relation/*ref*/Tasker S, Stonebridge G. Siblings, You Matter: Exploring the Needs of Adolescent Siblings of Children and Youth With Cancer. J Pediatr Nurs [Internet]. 2016 jul. 17[citado 2020 jul. 15];31(6):712-722. DOI: https://doi.org/10.1016/j.pedn.2016.06.005
dc.relation/*ref*/Pariseau EM, Chevalier L, Muriel AC, Long KA. Parental awareness of sibling adjustment: Perspectives of parents and siblings of children with cancer. J Fam Psychol [Internet]. 2019[citado 2020 jul. 15];34(6):698-708. DOI: https://doi.org/10.1037/fam0000615
dc.relation/*ref*/Wu YP, McPhail J, Mooney R, Martiniuk A, Amylon MD. A multisite evaluation of summer camps for children with cancer and their siblings. J Psychos Oncol [Internet]. 2016 sept. 2[citado 2020 jul. 15];34(6):449-459. DOI: https://doi.org/10.1080/07347332.2016.1217963
dc.relation/*ref*/Oberoi AR, Towry L, Eilenberg JS, Lun P, Lerro G, Alderfer MA, et al. Improving support to siblings of children with cancer through a community-academic partnership. Clin Pract Pediatr Psychol [Internet]. 2019[citado 2020 jul. 15];7(4):371-382. DOI: https://doi.org/10.1037/cpp0000280
dc.relation/*ref*/Fainsilber L, Fladeboe K, Lavi I, Friedman D, Compas B, King K, et al. Trajectories of marital, parent-child, and sibling conflict during pediatric cancer treatment. Health Psychol [Internet]. 2018[citado 2020 jul. 15];37(8):736-745. DOI: https://doi.org/10.1037/hea0000620
dc.relation/*ref*/Niemitz M, Goldbeck L. Outcomes of an enhancement study with additional psychoeducational sessions for healthy siblings of a child with cancer during inpatient family-oriented rehabilitation. Psycho-Oncol [Internet]. 2017 nov. 27[citado 2020 jul. 15];27(3): 892-899. DOI: https://doi.org/10.1002/pon.4599
dc.relation/*ref*/Besani C, McCusker C, Higgins A, McCarthy A. A family-based intervention to promote adjustment in siblings of children with cancer: A pilot study. Psycho-oncol [Internet]. 2018[citado 2020 jul. 15];27(8):2052-2055. DOI: https://doi.org/10.1002/pon.4756
dc.relation/*ref*/Kizmazoglu D, Sar S, Sezgin ME, Kantarcıoğlu A, Tüfekçi1 Ö, Yenigürbüz1 FD, et al. Assessment of Health-Related Quality of Life in Pediatric Acute Lymphoblastic Leukemia Survivors: Perceptions of Children, Siblings, and Parents. Turk J Haematol [Internet]. 2019 my. 3[citado 2020 jul. 15];36(2):112-6. Disponible en: https://pubmed.ncbi.nlm.nih.gov/30401658/ DOI: https://doi.org/10.4274/tjh.galenos.2018.2018.0351
dc.relation/*ref*/Barrera M, Atenafu EG, Schulte F, Nathan PC, Hancock K, Saleh A. A randomized controlled trial of a group intervention for siblings of children with cancer: Changes in symptoms of anxiety in siblings and caregivers. Psycho‐oncol [Internet]. 2018 mzo. 24[citado 2020 jul. 15];27(6):1629-1634. DOI: https://doi.org/10.1002/pon.4707
dc.relation/*ref*/Schulte F, Wurz A, Reynolds K, Strother D, Dewey D. Quality of Life in Survivors of Pediatric Cancer and Their Siblings: The Consensus Between Parent-Proxy and Self-Reports. Pediatr Blood Canc [Internet]. 2016[citado 2020 jul. 15];63(4):677-683. DOI: https://doi.org/10.1002/pbc.25868
dc.relation/*ref*/Lown EA, Hijiya N, Zhang N, Srivastava DK, Leisenring WM, Nathan PC, et al. Patterns and predictors of clustered risky health behaviors among adult survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Cancer [Internet]. 2016 jun. 3[citado 2020 jul. 15];122(17):2747-2756. DOI: https://doi.org/10.1002/cncr.30106
dc.relation/*ref*/Culminas E, Sievert-Fernandez A, Resurreccion M. Comparison of the Anxiety Levels in Children with Acute Lymphoblastic Leukemia and their Well Siblings using the Child Drawing: Hospital Manual. J Philip Med Assoc [Internet]. 2018[citado 2020 jul. 15];97(1):1-14. Disponible en: https://www.philippinemedicalassociation.org/wp-content/uploads/2019/03/FY-2018-2019-PMA-Journal-Volume-1.pdf
dc.relation/*ref*/Turner-Sack A, Menna R, Setchell SR, Maan C, Cataudella D. Psychological Functioning, Post-Traumatic Growth, and Coping in Parents and Siblings of Adolescent Cancer Survivors. onf [Internet]. 2016[citado 2020 jul. 15];43(1):48-56. DOI: https://doi.org/10.1188/16.onf.48-56
dc.relation/*ref*/Long K, Pariseau EM, Muriel AC, Chu A, Kazak AE, Alderfer MA. Development of a Psychosocial Risk Screener for Siblings of Children With Cancer: Incorporating the Perspectives of Parents. J Pediatr Psychol [Internet]. 2018 jul.[citado 2020 jul. 15];43(6):693-701. DOI: https://doi.org/10.1093/jpepsy/jsy021
dc.relation/*ref*/Van Warmerdam J, Sutradhar R, Kurdyak P, Lau C, Pole JD, Nathan PC, et al. Long-Term Mental Health Outcomes in Mothers and Siblings of Children With Cancer: A Population-Based, Matched Cohort Study. J Clinic Oncol [Internet]. 2019 [citado 2020 jul. 15];38(1):51-62. DOI: https://doi.org/10.1200/jco.19.01382
dc.relation/*ref*/Manterola C, Asenjo-Lobos C, Otzen T. Jerarquización de la evidencia. Niveles de evidencia y grados de recomendación de uso actual. Rev Chil Infectol [Internet]. 2014[citado 2020 jul. 15];31(6):705-718. DOI: https://doi.org/10.4067/s0716-10182014000600011
dc.relation/*ref*/Weiner JA, Woodley LK. An integrative review of sibling responses to childhood cancer. J Child Adolesc Psych Nurs [Internet]. 2018 dic. 12[citado 2020 jul. 15];31(4):109-119. DOI: https://doi.org/10.1111/jcap.12219
dc.relation/*ref*/Erker C, Yan K, Zhang L, Bingen K, Flynn KE, Panepinto J. Impact of pediatric cancer on family relationships. Cancer Med [Internet]. 2018 mzo. 25[citado 2020 jul. 15];7(5):1680-1688. DOI: https://doi.org/10.1002/cam4.1393
dc.relation/*ref*/Deavin A, Greasley P, Dixon C. Children’s Perspectives on Living With a Sibling With a Chronic Illness. Pediatrics [Internet]. 2018 ag.[citado 2020 jul. 18];142(2):e20174151. DOI: https://doi.org/10.1542/peds.2017-4151
dc.relation/*ref*/Van Schoors M, Caes L, Knoble NB, Goubert L, Verhofstadt LL, Alderfer MA. Systematic Review: Associations Between Family Functioning and Child Adjustment After Pediatric Cancer Diagnosis: A Meta-Analysis. J Pediatr Psychol [Internet]. 2017 en.[citado 2020 jul. 18];42(1):6-18. DOI: https://doi.org/10.1093/jpepsy/jsw070
dc.relation/*ref*/Havill N, Fleming LK, Knafl K. Well siblings of children with chronic illness: A synthesis research study. Res Nurs Health [Internet]. 2019 ag. 16[citado 2020 jul. 18];42(5):334-348. DOI: https://doi.org/10.1002/nur.21978
dc.relation/*ref*/Mu PF, Lee MY, Sheng CC, Tung PC, Huang LY, Chen YW. The experiences of family members in the year following the diagnosis of a child or adolescent with cancer: a qualitative systematic review. jbi Database System Rev Implement Rep [Internet]. 2015 jun. 12[citado 2020 jul. 18];13(5):293-329. DOI: https://doi.org/10.11124/jbisrir-2015-1698
dc.relation/*ref*/De Vries MC, Houtlosser M, Wit JM, Engberts DP, Bresters D, Kaspers GJL, et al. Ethical issues at the interface of clinical care and research practice in pediatric oncology: a narrative review of parents’ and physicians’ experiences. bmc Med Ethics [Internet]. 2011 sept. 27[citado 2020 jul. 18];12(18). DOI: https://doi.org/10.1186/1472-6939-12-18
dc.relation/*ref*/Winter MC, Friedman DN, McCabe MS, Voigt LP. Content review of pediatric ethics consultations at a cancer center. Pediatr Blood Cancer [Internet]. 2019 en. 21[citado 2020 jul. 18];66(5):e27617. DOI: https://doi.org/10.1002/pbc.27617
dc.rightsDerechos de autor 2022 Revista Latinoamericana de Bioética
dc.rightshttp://creativecommons.org/licenses/by-nc-nd/4.0
dc.sourceRevista Latinoamericana de Bioética; Vol. 22 Núm. 1 (2022); 45-64
dc.source2462-859X
dc.source1657-4702
dc.subjectife-changing events
dc.subjectbrothers
dc.subjectpediatrics
dc.subjectneoplasms
dc.subjectreview literature as an issue
dc.subjectholistic health
dc.subjectacontecimientos que cambian la vida;
dc.subjecthermanos;
dc.subjectpediatría;
dc.subjectneoplasias;
dc.subjectliteratura de revisión como asunto;
dc.subjectsalud holística
dc.subjecteventos de mudança de vida
dc.subjectirmãos
dc.subjectpediatria
dc.subjectneoplasias
dc.subjectrevisão da literatura como assunto
dc.subjectsaúde holística
dc.titlethe Brother of the Child with Cancer Deserves to be Visible: Scoping Review
dc.titleEl hermano del niño con cáncer merece ser visible: Scoping Review
dc.titleO irmão da criança com câncer merece ser visível: Scoping Review
dc.typeinfo:eu-repo/semantics/article
dc.typeinfo:eu-repo/semantics/publishedVersion


Este ítem pertenece a la siguiente institución