A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy

dc.contributorPlan Nacional of I+D of Ministerio de Economia y Competitividad form Spnish Government and Catalan Government
dc.contributornull
dc.creatorBoixadós, Mercè; Universitat Oberta de Catalunya
dc.creatorGómez-Zúñiga, Benigna; Universitat Oberta de Catalunya
dc.creatorHernández-Encuentra, Eulàlia; Universitat Oberta de Catalunya
dc.creatorGuillamón, Noemí; Universitat Oberta de Catalunya
dc.creatorRedolar-Ripoll, Diego; Universitat Oberta de Catalunya
dc.creatorPousada, Modesta; Universitat Oberta de Catalunya
dc.creatorMuñoz-Marrón, Elena; Universitat Oberta de Catalunya
dc.creatorArmayones, Manuel; Universitat Oberta de Catalunya
dc.date2018-02-24T16:04:42Z
dc.date2020-04-15T18:28:02Z
dc.date2023-05-11T17:07:38Z
dc.date2018-02-24T16:04:42Z
dc.date2020-04-15T18:28:02Z
dc.date2023-05-11T17:07:38Z
dc.date2014-04-15
dc.date.accessioned2023-08-24T02:05:12Z
dc.date.available2023-08-24T02:05:12Z
dc.identifierhttp://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132
dc.identifier10.11144/Javeriana.UPSY13-4.psdw
dc.identifier2011-2777
dc.identifier1657-9267
dc.identifierhttps://hdl.handle.net/20.500.12032/104178
dc.identifier.urihttps://repositorioslatinoamericanos.uchile.cl/handle/2250/8399736
dc.descriptionThe objective is to present a website designed to improve the quality of life of caregivers of children with cerebral palsy and show data concerning its usefulness. The website was developed in accordance with scientific literature about caregivers’ burden. We organized the website around different sections (e.g. family communication, learning to relax) and social support forums. The interactive features of the site were designed to accommodate different caregivers’ needs and enable them to choose different pathways according to their own individual needs. Participants were 10 caregivers who took part in a pilot study and completed a questionnaire to analyze the usefulness of the website after five months using it. Preliminary results suggested that the website was useful for participants. The most useful sections were the “peer-to-peer” and the professional forums. This study shows the potential of an online intervention for parents of children with cerebral palsy.
dc.formatPDF
dc.formatapplication/pdf
dc.languagespa
dc.publisherPontificia Universidad Javeriana
dc.relationhttp://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132/10028
dc.relationhttp://revistas.javeriana.edu.co/index.php/revPsycho/article/downloadSuppFile/5132/1288
dc.subjectintervención en línea; bienestar; carga del cuidador; calidad de vida; parálisis cerebral
dc.subjectonline intervention; well-being; caregiver burden; quality of life; cerebral palsy
dc.titleA pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy


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