dc.creator | Villaca, Paula Ribeiro | |
dc.creator | Blanchette, V. S. | |
dc.creator | Carneiro, J. D. A. | |
dc.creator | Ozelo, Margareth Castro | |
dc.creator | Antunes, Sandra Vallin [UNIFESP] | |
dc.creator | Feldman, B. M. | |
dc.creator | Abad, A. | |
dc.creator | Usuba, K. | |
dc.creator | Young, N. L. | |
dc.date.accessioned | 2020-07-31T12:47:26Z | |
dc.date.accessioned | 2022-10-07T20:44:41Z | |
dc.date.available | 2020-07-31T12:47:26Z | |
dc.date.available | 2022-10-07T20:44:41Z | |
dc.date.created | 2020-07-31T12:47:26Z | |
dc.date.issued | 2016 | |
dc.identifier | Haemophilia. Hoboken, v. 22, n. 6, p. 894-897, 2016. | |
dc.identifier | 1351-8216 | |
dc.identifier | https://repositorio.unifesp.br/handle/11600/56829 | |
dc.identifier | 10.1111/hae.13031 | |
dc.identifier | WOS:000388493000027 | |
dc.identifier.uri | http://repositorioslatinoamericanos.uchile.cl/handle/2250/4022181 | |
dc.description.abstract | IntroductionIt is essential to assess the health-related quality of life outcomes of boys with haemophilia in Brazil. The Canadian Haemophilia Outcomes-Kids Life Assessment Tool (CHO-KLAT) was recently adapted for this population. AimTo test the construct validity of the Portuguese version of the CHO-KLAT. MethodsWe recruited 50 boys, with moderate [factor VIII (FVIII) level 1-5%] or severe (FVIII level <1%) haemophilia, to participate in a descriptive study to establish a baseline understanding of the current status of boys with haemophilia in Brazil. All boys were required to complete the Brazilian CHO-KLAT and Brazilian Pediatric Quality of Life Inventory (PedsQL) by self-report. We examined the correlation between the CHO-KLAT and PedsQL scores to establish the construct validity of the Brazilian version of the CHO-KLAT. ResultsWe obtained CHO-KLAT and PedsQL data from 35 boys with severe haemophilia and 15 with moderate haemophilia. They ranged in age from 7.3 to 18.0 years, with a mean of 13.0 years. They reported a mean CHO-KLAT score of 72.3 (range = 44.1-93.9). The mean PedsQL score was 79.9 (range = 45.7-96.7), with physical health (mean of 83.9) being better than psychosocial health (77.8). The Pearson's correlation between CHO-KLAT and PedsQL was 0.47 respectively (P < 0.001). The CHO-KLAT had a moderate and inverse relationship with the degree to which they were bothered by their haemophilia ( = -0.53), while the PedsQL had a weaker relationship ( = -0.27). ConclusionThe results confirm the validity of the Portuguese version of the CHO-KLAT. This measure is now available for clinical trials in boys with haemophilia in Brazil. | |
dc.language | eng | |
dc.publisher | Wiley-Blackwell | |
dc.relation | Haemophilia | |
dc.rights | Acesso restrito | |
dc.subject | haemophilia | |
dc.subject | outcome measurement | |
dc.subject | paediatrics | |
dc.subject | quality of life | |
dc.title | Validity of the Portuguese CHO-KLAT in Brazil | |
dc.type | Artigo | |