dc.creatorPoletta, Fernando Adrián
dc.creatorGili, Juan Antonio
dc.creatorCastilla, Eduardo Enrique
dc.date.accessioned2018-01-15T20:59:44Z
dc.date.accessioned2018-11-06T12:36:41Z
dc.date.available2018-01-15T20:59:44Z
dc.date.available2018-11-06T12:36:41Z
dc.date.created2018-01-15T20:59:44Z
dc.date.issued2014-01
dc.identifierGili, Juan Antonio; Castilla, Eduardo Enrique; Poletta, Fernando Adrián; Latin American Collaborative Study of Congenital Malformations (ECLAMC): a model for health collaborative studies; Karger; Public Health Genomics; 17; 2; 1-2014; 61-67
dc.identifier1662-4246
dc.identifierhttp://hdl.handle.net/11336/33364
dc.identifier1662-8063
dc.identifierCONICET Digital
dc.identifierCONICET
dc.identifier.urihttp://repositorioslatinoamericanos.uchile.cl/handle/2250/1868274
dc.description.abstractBACKGROUND: For the past 46 years, the Latin American Collaborative Study of Congenital Malformations (ECLAMC) has successfully dealt with a low-priority health problem in the region, using installed capacity and low technological complexity, aimed at research rather than health information and action. Originally planned for a city, but rapidly expanded to whole South America and beyond, involving more than 200 hospitals from 12 Latin American countries: Argentina, Bolivia, Brazil, Chile, Colombia, Costa Rica, Dominican Republic, Ecuador, Paraguay, Peru, Uruguay, and Venezuela. In the present study, the ECLAMC structure is shown as a social network with the aim to facilitate its transfer. METHODS: Data from 261 hospitals from 12 countries that have participated in the ECLAMC program during 1967-2012 were included in this work. Three types of data were evaluated for network analysis: data collection, participation in special research projects, and co-authorships. Indicators as total size (number of nodes), path count, density, degree centrality, closeness centrality, and betweenness centrality were estimated to compare the structural characteristics and attributes of the networks. RESULTS: The ECLAMC networks can be defined, from the social network analysis point of view, as a centralized, unimodal, afferent network for data collection; as a decentralized, bimodal, interactive network for special projects; and co-authorship of published papers. Conclusions: The key elements in the ECLAMC program are: collaboration between motivated expert people, voluntarily accepting the same research protocol, with a sense of belonging to the working-team, based on mutual trustfulness within a transparent framework, with explicit rules, aimed at producing data of internationally competitive quality. This example is proposed for future health programs, mainly in low- and middle-income areas.
dc.languageeng
dc.publisherKarger
dc.relationinfo:eu-repo/semantics/altIdentifier/url/https://www.karger.com/Article/Abstract/356568
dc.relationinfo:eu-repo/semantics/altIdentifier/doi/http://dx.doi.org/10.1159/000356568
dc.rightshttps://creativecommons.org/licenses/by-nc-sa/2.5/ar/
dc.rightsinfo:eu-repo/semantics/restrictedAccess
dc.subjectBirth defects
dc.subjectCongenital diseases
dc.subjectDeveloping countries
dc.subjectEpidemiology Surveillance
dc.titleLatin American Collaborative Study of Congenital Malformations (ECLAMC): a model for health collaborative studies
dc.typeArtículos de revistas
dc.typeArtículos de revistas
dc.typeArtículos de revistas


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