Parents' Experiences Of Having A Baby With Ambiguous Genitalia

dc.creatorOliveira
dc.creatorMailme de Souza; de Paiva-e-Silva
dc.creatorRoberto Benedito; Guerra-Junior
dc.creatorGil; Maciel-Guerra
dc.creatorAndrea Trevas
dc.date2015-JUL
dc.date2016-06-07T13:15:29Z
dc.date2016-06-07T13:15:29Z
dc.date.accessioned2018-03-29T01:36:13Z
dc.date.available2018-03-29T01:36:13Z
dc.identifier
dc.identifierParents' Experiences Of Having A Baby With Ambiguous Genitalia. Walter De Gruyter Gmbh, v. 28, p. 833-838 JUL-2015.
dc.identifier0334-018X
dc.identifierWOS:000358308400017
dc.identifier10.1515/jpem-2014-0457
dc.identifierhttp://www.degruyter.com/view/j/jpem.2015.28.issue-7-8/issue-files/jpem.2015.28.issue-7-8.xml
dc.identifierhttp://repositorio.unicamp.br/jspui/handle/REPOSIP/241886
dc.identifier.urihttp://repositorioslatinoamericanos.uchile.cl/handle/2250/1305584
dc.descriptionConselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq)
dc.descriptionHealth professionals must be aware of the impact on parents of the birth of children with ambiguous genitalia. This study aimed to analyze the experiences and perceptions of such parents. Parents of 30 children who were evaluated in a reference center for disorders of sex development (DSD) were interviewed. The questionnaire covered the prenatal period, the moment they were told about the disorder, initial management by health professionals, and problems they experienced. Only two cases were detected during pregnancy. The news was usually given to the mother alone by pediatricians. Most parents kept it secret and avoided exposing the baby to the prejudice of others. Parents of children who were referred without sex assignment usually held a personal belief of their child's sex. Previous assignment was based on clinical examination and/or karyotype. Spreading knowledge about DSD could increase awareness of this issue, thus reducing parents' shock and societal stigma. Training of neonatal care teams is required to avoid assignment before evaluation.
dc.description28
dc.description
dc.description
dc.description833
dc.description838
dc.descriptionConselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq)
dc.descriptionConselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq)
dc.description
dc.description
dc.description
dc.languageen
dc.publisherWALTER DE GRUYTER GMBH
dc.publisher
dc.publisherBERLIN
dc.relationJOURNAL OF PEDIATRIC ENDOCRINOLOGY & METABOLISM
dc.rightsfechado
dc.sourceWOS
dc.subjectSex Development
dc.subjectAndrogen Insensitivity
dc.subjectDisorders
dc.subjectClassification
dc.subjectNarratives
dc.subjectDiagnosis
dc.subjectSurgeries
dc.titleParents' Experiences Of Having A Baby With Ambiguous Genitalia
dc.typeArtículos de revistas


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