Socioeconomic And Demographic Characteristics Of Sickle Cell Disease Patients From A Low-income Region Of Northeastern Brazil.

dc.creatorFernandes, Thales Allyrio Araújo de Medeiros
dc.creatorMedeiros, Tereza Maria Dantas de
dc.creatorAlves, Jayra Juliana Paiva
dc.creatorBezerra, Christiane Medeiros
dc.creatorFernandes, José Veríssimo
dc.creatorSerafim, Édvis Santos Soares
dc.creatorFernandes, Maria Zélia
dc.creatorSonati, Maria de Fatima
dc.date
dc.date2016-05-23T19:42:25Z
dc.date2016-05-23T19:42:25Z
dc.date.accessioned2018-03-29T01:29:42Z
dc.date.available2018-03-29T01:29:42Z
dc.identifierRevista Brasileira De Hematologia E Hemoterapia. v. 37, n. 3, p. 172-177
dc.identifier1516-8484
dc.identifier10.1016/j.bjhh.2015.03.013
dc.identifierhttp://www.ncbi.nlm.nih.gov/pubmed/26041419
dc.identifierhttp://repositorio.unicamp.br/jspui/handle/REPOSIP/235740
dc.identifier26041419
dc.identifier.urihttp://repositorioslatinoamericanos.uchile.cl/handle/2250/1303983
dc.descriptionTo characterize the socioeconomic and demographic aspects of sickle cell disease patients from the state of Rio Grande do Norte (RN), Northeast Brazil, and their adherence to the recommended treatment. This cross-sectional descriptive study was performed at referral centers for the treatment of hematological diseases. One hundred and fifty-five unrelated individuals with sickle cell disease who went to these centers for outpatient visits were analyzed. All the patients, or their caregivers, were informed about the research procedures and objectives, and answered a standardized questionnaire. The patients were predominantly younger than 12 years old, self-declared as mulatto, lived in small towns fairly distant from the referral center, and had low education and socioeconomic levels. Individuals who were ten or younger were diagnosed at an earlier age. Almost 50% of the patients were taking hydroxyurea, 91.4% reported having received pneumococcal/meningococcal vaccinations and 76.1% received penicillin as antibiotic prophylaxis. However, the majority of them reported having difficulties following the recommendations of the physicians, mainly in respect to attaining the prescribed medications and transportation to the referral centers. These individuals have a vulnerable socioeconomic situation that can lead to an aggravation of their general health and thus deserve special attention from the medical and psychosocial perspectives. Thus, it is necessary to improve public policies that provide Brazilian sickle cell disease patients with better access to medical treatment, living conditions, and integration into society.
dc.description37
dc.description172-177
dc.languageeng
dc.relationRevista Brasileira De Hematologia E Hemoterapia
dc.relationRev Bras Hematol Hemoter
dc.rightsfechado
dc.sourcePubMed
dc.subjectAnemia
dc.subjectHydroxyurea
dc.subjectPenicillin
dc.subjectSickle Cell
dc.subjectSocioeconomic Factors
dc.subjectVaccination
dc.titleSocioeconomic And Demographic Characteristics Of Sickle Cell Disease Patients From A Low-income Region Of Northeastern Brazil.
dc.typeArtículos de revistas


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