dc.creator | Fernandes P.T. | |
dc.creator | Snape D.A. | |
dc.creator | Beran R.G. | |
dc.creator | Jacoby A. | |
dc.date | 2011 | |
dc.date | 2015-06-30T20:18:20Z | |
dc.date | 2015-11-26T14:47:47Z | |
dc.date | 2015-06-30T20:18:20Z | |
dc.date | 2015-11-26T14:47:47Z | |
dc.date.accessioned | 2018-03-28T21:58:23Z | |
dc.date.available | 2018-03-28T21:58:23Z | |
dc.identifier | | |
dc.identifier | Epilepsy And Behavior. , v. 22, n. 1, p. 55 - 62, 2011. | |
dc.identifier | 15255050 | |
dc.identifier | 10.1016/j.yebeh.2011.02.014 | |
dc.identifier | http://www.scopus.com/inward/record.url?eid=2-s2.0-80052483184&partnerID=40&md5=b26cedf6ef5170a7ce94be8396691606 | |
dc.identifier | http://www.repositorio.unicamp.br/handle/REPOSIP/107512 | |
dc.identifier | http://repositorio.unicamp.br/jspui/handle/REPOSIP/107512 | |
dc.identifier | 2-s2.0-80052483184 | |
dc.identifier.uri | http://repositorioslatinoamericanos.uchile.cl/handle/2250/1253410 | |
dc.description | Stigma is a major issue for people who develop epilepsy. Reducing stigma is a major focus of activity for the epilepsy patient support groups globally. In this paper, we introduce some key ideas and debates about the nature of and drivers for the stigma of epilepsy, including recent arguments about the need to frame analyses of the nature of epilepsy stigma within sociological debates about conflict and power. We then consider the role of the legislative process for redressing power imbalances that promote or maintain epilepsy stigma; and the value of tailored educational campaigns and programmes directed at stigma reduction. Finally, we consider the nature of 'difference' as experienced by people with epilepsy and how that difference translates into stigma; and provide evidence from a specific targeted intervention to combat epilepsy stigma that its reduction is an achievable goal. © 2011 Elsevier Inc. | |
dc.description | 22 | |
dc.description | 1 | |
dc.description | 55 | |
dc.description | 62 | |
dc.description | (2001) Global Campaign Against Epilepsy. Out of the shadows: an introduction to the global campaign and its demonstration projects, , http://www.WHO.int, GCAE, Heemstede, Also accessible at: | |
dc.description | Goffman, E., (1963) Stigma: notes on the management of spoiled identity, , Prentice-Hall, Upper Saddle River, NJ | |
dc.description | Temkin, O., (1971) The falling sickness, , John Hopkins Press, Baltimore | |
dc.description | Crocker, J., Major, B., Steele, C., Social stigma (1998) The handbook of social psychology, pp. 504-553. , McGraw-Hill, Boston, D.T. Gilbert, S.T. Fiske, L. Gardner (Eds.) | |
dc.description | Reidpath, D.D., Chan, K.Y., Gifford, S.M., 'He hath the 'French pox': stigma, social value, and social exclusion (2005) Sociol Health Illn, 27, pp. 468-489 | |
dc.description | Bagley, C., Social prejudice and the adjustment of people with epilepsy (1972) Epilepsia, 13, pp. 33-45 | |
dc.description | Scambler, G., (1989) Epilepsy, , Tavistock Press, London | |
dc.description | Jones, E.E., Farina, A., Hastorf, A.H., (1984) Social stigma: the psychology of marked relationships, , Freeman, New York | |
dc.description | Fadiman, A., (1998) The spirit catches you and you fall down: a Hmong child, her American doctors and the collision of two cultures, , Farrar Straus & Giroux, New York | |
dc.description | Ismail, H., Wright, J., Rhodes, P., Small, N., Jacoby, A., South Asians and epilepsy: exploring health experiences, needs and beliefs of communities in the north of England (2005) Seizure, 14, pp. 497-503 | |
dc.description | Allotey, J., Reidpath, D., Epilepsy, culture, identity and well-being: a study of the social, cultural and environmental context of epilepsy in Cameroon (2007) J Health Psychol, 12, pp. 431-443 | |
dc.description | Winkler, A.S., Mayer, M., Schnaitmann, S., Belief systems of epilepsy and attitudes toward people living with epilepsy in a rural community of northern Tanzania (2010) Epilepsy Behav, 19, pp. 596-601 | |
dc.description | Kleinman, A., Wang, W., Li, S., The social course of epilepsy: chronic illness as social experience in interior China (1995) Soc Sci Med, 40, pp. 1319-1330 | |
dc.description | Austin, J.K., Shafer, P.O., Deering, J.B., Epilepsy familiarity, knowledge and perceptions of stigma: report from a survey of adolescents in the general population (2002) Epilepsy Behav, 3, pp. 368-375 | |
dc.description | Novotna, I., Rektor, I., The trend in public attitudes in the Czech Republic towards persons with epilepsy (2002) Eur J Neurol, 9, pp. 535-540 | |
dc.description | Beran, R.G., Frith, J., Harris, M., Practices and perspectives of Australian general practitioners pertaining to epilepsy after a decade of intervention (1992) Seizure, 1, p. 13 | |
dc.description | Shehata, G.A., Mahran, D.G., Knowledge, attitude and practice with respoct to epilepsy among school teachers in Assuit city, Egypt (2010) Epilepsy Res, 92, pp. 192-200 | |
dc.description | Reis, R., Epilepsy and self-identity among the Dutch (2001) Med Anthropol, 19, pp. 355-382 | |
dc.description | Jacoby, A., Gorry, J., Gamble, C., Baker, G., Public knowledge, private grief: a study of public attitudes to epilepsy in the UK and implications for stigma (2004) Epilepsia, 45, pp. 1405-1415 | |
dc.description | Kleinman, A., Local worlds of suffering: an interpersonal focus for ethnographies of illness experience (1992) Qual Health Res, 2, pp. 127-134 | |
dc.description | Jacoby, A., Wang, W., Dang Vu, T., Meanings of epilepsy in its sociocultural context and implications for stigma: findings from ethnographic studies in local communities in China and Vietnam (2008) Epilepsy Behav, 12, pp. 286-297 | |
dc.description | Yang, R.R., Snape, D., Wang, W.Z., Stigma of people with epilepsy in China: views of health professionals, teachers, employers and community leaders (2011) Epilepsy Behav, 21, pp. 261-266 | |
dc.description | Scambler, G., Hopkins, A., Being epileptic: coming to terms with stigma (1986) Sociol Health Illn, 8, pp. 26-43 | |
dc.description | Jacoby, A., Felt versus enacted stigma: a concept revisited (1994) Soc Sci Med, 38, pp. 269-274 | |
dc.description | Baker, G.A., Jacoby, A., Buck, D., Stalgis, C., Monnet, D., Quality of life of people with epilepsy: a European study (1997) Epilepsia, 38, pp. 353-362 | |
dc.description | Baker, G.A., Brooks, J., Buck, D., The stigma of epilepsy: a European perspective (2000) Epilepsia, 41, pp. 98-104 | |
dc.description | Baker, G.A., Jacoby, T., Gorry, T., Doughty, J., Ellina, V., Quality of life of people with epilepsy in Iran, the Gulf, and Near East (2005) Epilepsia, 46, pp. 132-140 | |
dc.description | Ratsepp, M., Oun, A., Haldre, S., Felt stigma and impact of epilepsy on employment status among Estonian people: exploratory study (2000) Seizure, 9, pp. 394-401 | |
dc.description | Finch, B., Finch, B., Kolody, B., Vega, W., Perceived discrimination and depression among Mexican-origin adults in California (2000) J Health Soc Behav, 41, pp. 295-313 | |
dc.description | Harrell, S., A multidimensional conceptualization of racism-related stress: implications for the well-being of people of color (2000) Am J Orthopsychiatry, 70, pp. 42-57 | |
dc.description | Arnston, P., Drodge, D., Norton, R., The perceived psychosocial consequences of having epilepsy (1986) Psychopathology in epilepsy: social dimensions, pp. 143-161. , Oxford Univ. Press, Oxford, S. Whitman, B. Hermann (Eds.) | |
dc.description | Hermann, B.P., Whitman, S., Wyler, A.R., Anton, M.T., Vanderzwagg, R., Psychosocial predictors of psychopathology in epilepsy (1990) Br J Psychiatr, 156, pp. 98-105 | |
dc.description | Smith, G., Ferguson, P.L., Saunders, L.L., Psychosocial factors associated with stigma in adults with epilepsy (2009) Epilepsy Behav, 16, pp. 484-490 | |
dc.description | Whatley, A.D., DiIorio, C.K., Yeager, K., Examining the relationships of depressive symptoms, stigma, social support and regimen-specific support on QOL in adult patients with epilepsy (2010) Health Educ Res, 25, pp. 575-584 | |
dc.description | Jacoby, A., Gorry, J., Baker, G.A., Employers' attitudes to employment of people with epilepsy: still the same old story? (2005) Epilepsia, 46, pp. 1978-1987 | |
dc.description | Gade, E., Toutges, G., Employers' attitudes to hiring epileptics: implications for job placement (1983) Rehabil Couns Bull, pp. 353-356 | |
dc.description | Roessler Sumner Roessler, R.T., Sumner, G., Employer opinions about accommodating employees with chronic illnesses (1997) J Appl Rehabil Couns, 28, pp. 29-34 | |
dc.description | Lee, P., Has disability discrimination legislation changed the legal framework for epilepsy in the United Kingdom? (2010) Seizure, 19, pp. 619-622 | |
dc.description | Robson, C., (2006), Examining the social stigma of epilepsy: a qualitative analysis of attitudes, perceptions and understanding towards epilepsy and people with epilepsy among young adults in the undergraduate population. M.Sc. thesis, Department of Health Sciences, University of York;Reis, R., Meinardi, H., Stigma: does the flag identify the cargo? (2002) Epilepsy Behav, 3, pp. S33-S37 | |
dc.description | Link, B.G., Understanding labelling effects in the area of mental-disorders: an assessment of the effects of expectations of rejection (1987) Am Sociol Rev, 52, pp. 96-112 | |
dc.description | Kai, J., Crossland, A., Perspectives of people with enduring mental ill health from a community-based qualitative study (2001) Br J Gen Pract, 51, pp. 730-736 | |
dc.description | Scambler, G., Re-framing stigma: felt and enacted stigma and challenges to the sociology of chronic and disabling conditions (2004) Soc Theory Health, 2, pp. 29-46 | |
dc.description | Anspach, R.R., From stigma to identity politics: political activism among the physically disabled and former mental patients (1979) Soc Sci Med, 13 A, pp. 765-773 | |
dc.description | De Boer, H.M., Out of the shadows: a global campaign against epilepsy (2002) Epilepsia, 43 (SUPPL. 6), pp. 7-8 | |
dc.description | Dell, J.L., Social dimensions of epilepsy: stigma and response (1986) Psychopathology in epilepsy: social dimensions, pp. 185-210. , Oxford Univ. Press, Oxford, S. Whitman, B. Hermann (Eds.) | |
dc.description | Muhlbauer, S., Experience of stigma by families with mentally ill members (2002) J Am Psychiatr Nurses Assoc, 8, pp. 76-83 | |
dc.description | (2006) Neurological disorders: public health challenges, , WHO, Geneva | |
dc.description | Paschal, A.M., Hawley, S.R., St.Romain, T., Epilepsy patients' perceptions about stigma, education and awareness: preliminary responses based on a community participatory approach (2007) Epilepsy Behav, 11, pp. 329-337 | |
dc.description | Jilek-Aall, L., Jilek, M., Kaaya, J., Mkombachepa, L., Hillary, K., Psychosocial study of epilepsy in Africa (1997) Soc Sci Med, 45, pp. 783-795 | |
dc.description | Editorial (2004) Epilepsy Behav, 5, pp. 275-276. , The Epilepsy Foundation | |
dc.description | Demissie, M., Getahun, H., Lindtørn, B., Community tuberculosis care through "TB clubs" in rural North Ethiopia (2003) Soc Sci Med, 56, pp. 2009-2018 | |
dc.description | Krishnatray, P.K., Melkote, S.R., Public communication campaigns in the destigmatization of leprosy: a comparative analysis of diffusion and participatory approaches. A case study in Gwalior, India (1998) J Health Commun, 3, pp. 327-344 | |
dc.description | Brown, L., Macintyre, K., Trujillo, L., Interventions to reduce HIV/AIDS stigma: what have we learned? (2003) AIDS Educ Prev, 15, pp. 49-69 | |
dc.description | Stuart, H., Stigmatisation: lessons from the program aimed at its reduction (2003) Ment Health Quebec, p. 28 | |
dc.description | Brown, L., Trujillo, L., Macintyre, K., (2001) Interventions to reduce HIV/AIDS stigma: what have we learned?, , Horizons Program, Shreveport, LA | |
dc.description | Van der Meij, S., The fight against stigma: stigma reduction strategies and interventions (2004) Paper prepared for the 1st Stigma Consortium meeting | |
dc.description | Soesterberg | |
dc.description | Schneider, J.W., Conrad, P., (1983) Having epilepsy: the experience and control of illness, , Temple Univ. Press, Philadelphia | |
dc.description | Sander, J.W.A.S., Sillanpaa, M., Natural history and prognosis (1997) Epilepsy: a comprehensive textbook, pp. 69-86. , Lippincott-Raven, Philadelphia, J. Engel, T.A. Pedley (Eds.) | |
dc.description | Polkinghorne, D.E., Narrative configuration in qualitative analysis (1995) Life history and narrative, pp. 5-23. , Falmer Press, London, J.A. Hatch, R. Wisniewski (Eds.) | |
dc.description | Mishler, E.G., (1986) Research interviewing context and narrative, , Harvard Univ. Press, London | |
dc.description | Bruner, J., (1990) Acts of meaning: four lectures on mind and culture, , Harvard Univ. Press, Cambridge, MA | |
dc.description | Kleinman, A., Experience and its moral modes (1999) Tanner lectures on human values, pp. 357-420. , Univ. of Utah Press, Salt Lake City, G. Peterson (Ed.) | |
dc.description | Becker, G., (1999) Disrupted lives: how people create meaning in a chaotic world, , Univ. of California Press, Los Angeles/London | |
dc.description | Bury, M.R., Chronic illness as biographical disruption (1982) Sociol Health Illn, 4, pp. 167-182 | |
dc.description | Garro, L.C., Narrative representations of chronic illness experience: cultural models of illness, mind and body in stories concerning the temporomandibular joint (TMJ) (1994) Soc Sci Med, 38, pp. 775-788 | |
dc.description | Kleinmann, A., (1988) The illness narratives: suffering, healing and the human condition, , Basic Books, New York | |
dc.description | Williams, G., The genesis of chronic illness: narrative reconstruction (1984) Sociol Health Illn, 6, pp. 175-200 | |
dc.description | Faircloth, C.A., Epilepsies, identities and difference: horizons of meaning for individuals with an epilepsy (1998) Qual Health Res, 8, pp. 602-617 | |
dc.description | Faircloth, C.A., Revisiting themetisation in the narrative study of epilepsy (1999) Sociol Health Illn, 21, pp. 209-227 | |
dc.description | Good, B.J., Good, M., In the subjunctive mode: epilepsy narratives in Turkey (1994) Soc Sci Med, 38, pp. 835-842 | |
dc.description | Nijhof, G., Heterogeneity in the interpretation of epilepsy (1998) Qual Health Res, 8, pp. 95-105 | |
dc.description | Mishler, E.G., The analysis of interview narratives (1986) Narrative psychology: the storied nature of human conduct, pp. 233-255. , Praeger, New York, T.R. Sarbin (Ed.) | |
dc.description | Riessman, C.K., (1993) Narrative analysis, , Sage, Newbury Park, CA | |
dc.description | Polkinghorne, D.E., (1988) Narrative knowing and the human sciences, , State Univ. Press of New York, Albany | |
dc.description | Yang, L.H., Kleinman, A., Link, B.G., Phelan, J.C., Lee, S., Good, B., Culture and stigma: adding moral experience to stigma theory (2007) Soc Sci Med, 64, pp. 1524-1535 | |
dc.description | Fernandes, P.T., De Barros, N.F., Li, L.M., Stop saying epileptic (2009) Epilepsia, 50, pp. 1280-1283 | |
dc.description | Fernandes, P.T., Noronha, A.L.A., Sander, J.W.A.S., Li, L.M., Stigma scale of epilepsy: the perception of epilepsy stigma in different cities in Brazil (2008) Arq Neuro Psiquiatr, 66, pp. 471-476 | |
dc.description | Fernandes, P.T., Salgado, P.C.B., Noronha, A.L.A., Epilepsy stigma perception in an urban area of a limited resource country (2007) Epilepsy Behav, 11, pp. 25-32 | |
dc.description | Fernandes, P.T., Salgado, P.C.B., Noronha, A.L.A., Barbosa, F.D., Souza, E.A.P., Li, L.M., Prejudice towards chronic diseases: comparison among AIDS, diabetes and epilepsy (2007) Seizure, 16, pp. 320-323 | |
dc.description | Li, L.M., Fernandes, P.T., Noronha, A.L.A., Demonstration Project on Epilepsy in Brazil: situation assessment (2007) Arq Neuro Psiquiatr, 65, pp. 5-13 | |
dc.description | Fernandes, P.T., Noronha, A.L.A., Sander, J.W.A.S., Bell, G.S., Li, L.M., Training the trainers and disseminating information: a strategy to educate health professionals on epilepsy (2007) Arq Neuro Psiquiatr, 65, pp. 14-22 | |
dc.description | Noronha, A.L.A., Fernandes, P.T., Andrade, M.G.G., Santiago, S.M., Sander, J.W.A.S., Li, L.M., Training medical students to improve the management of people with epilepsy (2007) Arq Neuro Psiquiatr, 65, pp. 23-27 | |
dc.description | Fernandes, P.T., Noronha, A.L.A., Araujo, U., Teachers perception about epilepsy (2007) Arq Neuro Psiquiatr, 65, pp. 28-34 | |
dc.description | Fernandes, P.T., Salgado, P.C.B., Noronha, A.L.A., Sander, J.W.A.S., Li, L.M., Stigma Scale of Epilepsy: validation process (2007) Arq Neuro Psiquiatr, 65, pp. 35-42 | |
dc.description | Caixeta, J., Fernandes, P.T., Bell, G.S., Sander, J.W.A.S., Li, L.M., Epilepsy perception among university students: a survey (2007) Arq Neuro Psiquiatr, 65, pp. 43-48 | |
dc.description | Reno, B.A., Fernandes, P.T., Bell, G.S., Sander, J.W.A.S., Li, L.M., Stigma and attitudes on epilepsy: a study with secondary school students (2007) Arq Neuro Psiquiatr, 65, pp. 49-54 | |
dc.description | Fernandes, P.T., Noronha, A.L.A., Sander, J.W.A.S., Li, L.M., National epilepsy movement in Brazil (2007) Arq Neuro Psiquiatr, 65, p. 57 | |
dc.description | Fernandes, P.T., Salgado, P.C.B., Noronha, A.L.A., Barbosa, F.D., Souza, E.A.P., Li, L.M., Prejudice towards chronic diseases: comparison among AIDS, diabetes and epilepsy (2007) Seizure, 16, pp. 320-323 | |
dc.description | Fernandes, P.T., Li, L.M., Percepção de estigma na epilepsia (2006) J Epilepsy Clin Neurophysiol, 12, pp. 207-218 | |
dc.description | Fernandes, P.T., Cabral, P., Araujo, U., Noronha, A.L., Li, L.M., Kids' perception about epilepsy (2005) Epilepsy Behav, 6, pp. 601-603 | |
dc.description | Salgado, P.C.B., Fernandes, P.T., Noronha, A.L.A., Doretto, F., Souza, E.A.P., Li, L.M., The second step in the construction of a stigma scale of epilepsy (2005) Arq Neuro Psiquiatr, 63, pp. 395-398 | |
dc.language | en | |
dc.publisher | | |
dc.relation | Epilepsy and Behavior | |
dc.rights | fechado | |
dc.source | Scopus | |
dc.title | Epilepsy Stigma: What Do We Know And Where Next? | |
dc.type | Artículos de revistas | |