Artículos de revistas
What About Us?. Siblings Of Children With Epilepsy
Registro en:
Seizure. , v. 15, n. 8, p. 610 - 614, 2006.
10591311
10.1016/j.seizure.2006.08.007
2-s2.0-33750455465
Autor
Tsuchie S.Y.
Guerreiro M.M.
Chuang E.
Baccin C.E.
Montenegro M.A.
Institución
Resumen
Rationale: It is known that epilepsy has a severe impact in the quality of life of the patients; however, it affects the lives of all family members. The psychosocial repercussions of epilepsy are often of greater significance than the seizures themselves. Methods: This was a prospective study, conducted from January 2005 to December 2005 at the pediatric epilepsy clinic of our University Hospital. Parents were interviewed by one of the authors according to a structured questionnaire about the impact of epilepsy in the life of the siblings of children with epilepsy. Results: One hundred and twenty-seven children, siblings of 78 patients with epilepsy were evaluated. From the 127 siblings of children with epilepsy, 60 were girls and 67 were boys. Ages ranged from 5 to 18 years old (mean = 11.7 years). After the diagnosis of epilepsy, the siblings had only negative feelings toward the disease, mostly sadness and fear. Conclusion: Our data showed that the impact of epilepsy in the lives of siblings of children with epilepsy is much more severe than previously suspected. © 2006 British Epilepsy Association. 15 8 610 614 Wong, J., Wirrel, E., Physical activity in children/teens with epilepsy compared with that in theirs siblings without epilepsy (2006) Epilepsia, 47, pp. 631-639 Wirrel, E., Blackman, M., Barlow, K., Mah, J., Hamiwka, L., Sleep disturbances in children with epilepsy compared with their nearest-aged siblings (2005) Dev Med Child Neurol, 47, pp. 754-759 Baker, G.A., Jacoby, A., Buck, D., Stalgis, C., Monnet, D., Quality of life of people with epilepsy: an European study (1997) Epilepsia, 38, pp. 353-362 Baker, G.A., Brooks, J., Buck, D., Jacoby, A., The stigma of epilepsy: an European perspective (1999) Epilepsia, 41, pp. 98-104 Suurmeijer, T.P.B.M., Reuvekamp, M.F., Aldenkamp, B.P., Social functioning, psychological functioning, and quality of life in epilepsy (2001) Epilepsia, 42, pp. 1160-1168 WirrelI, E.C., Camfield, C.S., Camfield, P.R., Dooley, J.M., Gordon, K.E., Smith, B., Long term psychosocial outcome in typical absence epilepsy (1997) Arch Pediatr Adolesc Med, 151, pp. 152-158 Pal, D.K., Epilepsy control in the twenty-first century: hidden impact on children and families (2003) Child Care Health Dev, 29, pp. 233-236 Camfield, C., Breau, L., Camfield, P., Impact of pediatric epilepsy on the family: a new scale for clinical and research use (2001) Epilepsia, 42, pp. 104-112 Souza, E.A.P., Nista, C.R., Scotoni, A.E., Guerreiro, M.M., Sentimentos e reações de pais de crianças epilépticas (1998) Arquivos de Neuropsiquiatria, 56, pp. 39-44 Fernandes, P.T., Souza, E.A.P., Identification of family variables in parents' groups of children with epilepsy (2001) Arquivos de Neuropsiquiatria, 59, pp. 854-858 Hoare, P., Russell, M., The quality of life of children with chronic epilepsy and their families: preliminary findings with a new assessment measure (1995) Dev Med Child Neurol, 37, pp. 689-696 Pal, D.K., Epilepsy control in the twenty-first century: hidden impact on children and families (2003) Child Health Care Dev, 29, pp. 233-236 Lähteenmäki, P.M., Sjöblom, J., Korhonen, T., Salmi, T.T., The siblings of childhood cancer patients need early support: a follow up study over the first year (2004) Arch Dis Child, 89, pp. 1008-1013 Houtzager, B.A., Grootenhuis, M.A., Hoekstra-Weebers, J.E., Last, B.F., One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer (2005) Child Care Health Dev, 31 (1), pp. 75-87 Cairns, N.U., Clark, G.M., Smith, S.D., Lansky, S.B., Adaptation of siblings to childhood malignancy (1979) J Pediatr, 95, pp. 484-487 Mancuso, M.G., Bishop, S., Blakeney, P., Robert, R., Gaa, J., Impact on the family: psychosocial adjustment of siblings of children who survive serious burns (2003) J Burn Care Rehabil, 24, pp. 110-118 Fernandes, P.T., Cabral, P., Araujo, U., Noronha, A.L., Li, L.M., Kids' perception about epilepsy (2005) Epilepsy Behav, 6, pp. 601-603 Hoare, P., Kerley, S., Psychosocial adjustment of children with chronic epilepsy and their families (1991) Dev Med Child Neurol, 33, pp. 201-215 Cheung, C., Wirrel, E., Adolescents' perception of epilepsy compared with other chronic diseases: "through a teenager's eyes" (2006) J Child Neurol, 21, pp. 214-222 Houtzager, B.A., Grootenhuis, M.A., Caron, H.N., Last, B.F., Sibling self-report, parental proxies, and quality of life: the importance of multiple informants for siblings of a critically ill child (2005) Pediatr Hematol Oncol, 22, pp. 25-40 Houtzager, B.A., Oort, F.J., Hoekstra-Weebers, J.E.H.M., Caron, H.N., Grootenhuis, M.A., Last, B.F., Coping and family functioning predict longitudinal psychological adaptation of siblings of childhood cancer patients (2004) J Pediatr Psychol, 29, pp. 591-605 Hoare, P., Kerley, S., Helping parents and children with epilepsy cope successfully: the outcome of a group programme for parents (1992) J Psychosom Res, 36, pp. 759-767