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Key learnings Chile can adopt to create and implement a national registry of rare diseases?
(2022)
There are 7000 identified rare diseases (RD) globally, and the definition of each RD varies from country to country. RD are often chronic, progressive, and frequently life-threatening. It is estimated that almost 400 million ...
Renal replacement therapy for children throughout the world: the need for a global registry
(Springer, 2018)
Background To describe the factors affecting the incidence of renal replacement therapy (RRT) among children, information from RRT registries is required. We aimed to give an overview of existing pediatric RRT registries ...
National cancer registry, 1980-1983
(1988)
Legislation making cancer a notifiable disease
was introduced in Costa Rica in 1976. At the same
time, a National Tumour Registry was established,
and collection of data commenced in March 1977.
The aims of the National ...
Diabetes-Related Excess Mortality in Mexico: A Comparative Analysis of National Death Registries Between 2017-2019 and 2020.
(American Diabetes Association, 2022)
OBJECTIVE: To estimate diabetes-related mortality in Mexico in 2020 compared with 2017-2019 after the onset of the coronavirus disease 2019 (COVID-19) pandemic.RESEARCH DESIGN AND METHODS: This retrospective, state-level ...
Flat trend of high caesarean section rates in Peru: A pooled analysis of 3,376,062 births from the national birth registry, 2012 to 2020: Caesarean section rates in Peru
(Elsevier, 2022)
Background: National and subnational C-section rates are seldom available in low- and middle-income countries to guide policies and interventions. We aimed to describe the C-section rates at the national and subnational ...
A comprehensive analysis of cardiovascular mortality trends in Peru from 2017 to 2022: Insights from 183,386 deaths of the national death registry
(Elsevier, 2023)
Background/objectives: Cardiovascular diseases are the leading cause of global mortality. Systematic studies on cardiovascular-related mortality at national and subnational levels in Peru are lacking. We aimed to describe ...
National cancer registry, 1980-1983
(1988)
Legislation making cancer a notifiable disease
was introduced in Costa Rica in 1976. At the same
time, a National Tumour Registry was established,
and collection of data commenced in March 1977.
The aims of the National ...