Artículos de revistas
Family Management Style Framework and Its Use With Families Who Have a Child Undergoing Palliative Care at Home
JOURNAL OF FAMILY NURSING, THOUSAND OAKS, v. 18, n. 1, Special Issue, supl. 1, Part 2, pp. 91-122, FEB, 2012
Bousso, Regina Szylit
Misko, Maira Deguer
Chiaradia Mendes-Castillo, Ana Marcia
Rossato, Lisabelle Mariano
Palliative care settings in many countries acknowledge families as their prime focus of care, but in Brazil, to date, researchers have devoted scant attention to that practice setting. In this article, we report the findings of a study that explored how families define and manage their lives when they have a child or adolescent undergoing palliative care at home. Data included individual semistructured interviews with 14 family members of 11 different families. Interviews were transcribed and the coding procedure featured qualitative content analysis methods. The deductive coding was based on the major components of the Family Management Style Framework and the eight dimensions comprising these components. The analysis provides insight into families' daily practices and problems inherent in managing their everyday lives that are encountered when they have a child in palliative care. The article features discussion of implications for the palliative care related development of family nursing practice.
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Moimaz, Suzely Adas Saliba; Fadel, Cristina Berger; Yarid, Sérgio Donha; Diniz, Diego Garcia
Universidade Estadual Paulista (UNESP); Universidade Estadual de Ponta Grossa (UEPG) (2011-05-11)The Family Health Strategies, incorporated by the Ministry of Health in 1994, has consolidated the national policy of health care that has as its main care focus the family. In this model, this institution constitutes the ...
ANGELO, Margareth (SAGE PUBLICATIONS INC, 2008)A family perspective has been influencing Brazilian nursing practice and research, in particular in the past decade. Despite this development, there is evidence from research and from nurses` narratives that nurses still ...