The Ped-APS registry: The antiphospholipid syndrome in childhood

dc.contributorUniversidade Estadual Paulista (UNESP)
dc.creatorAvčin, Tadej
dc.creatorCimaz, R.
dc.creatorRozman, B.
dc.creatorCervera, Ricard
dc.creatorRavelli, Angelo
dc.creatorMartini, Alberto
dc.creatorMeroni, Pier Luigi
dc.creatorGaray, Stella
dc.creatorSztajnbok, Flavio R.
dc.creatorSilva, Clovis A.
dc.creatorCampos, Lucia M.
dc.creatorSaad-Magalhaes, Claudia
dc.creatorde Oliveira, Sheila Knupp Feitosa
dc.creatorSilverman, Earl D.
dc.creatorNielsen, Susan
dc.creatorPruunsild, Chris
dc.creatorDressler, Frank
dc.creatorBerkun, Yackov
dc.creatorPadeh, Shai
dc.creatorBarash, Judith
dc.creatorUziel, Yosef
dc.creatorHarel, Liora
dc.creatorMukamel, Masha
dc.creatorRevel-Vilk, Shoshana
dc.creatorKenet, Gili
dc.creatorGattorno, Marco
dc.creatorRigante, Donato
dc.creatorZulian, Francesco
dc.creatorFalcini, Fernanda
dc.creatorKuzmanovska, Dafina B.
dc.creatorSusic, Gordana
dc.creatorBuyukgebiz, Atilla
dc.creatorOzisik, Kanat
dc.creatorGozdasoglu, Sevgi
dc.creatorRodriguez, Vilmarie
dc.creatorButani, Lavjay
dc.date2014-05-27T11:23:57Z
dc.date2016-10-25T18:27:19Z
dc.date2014-05-27T11:23:57Z
dc.date2016-10-25T18:27:19Z
dc.date2009-08-25
dc.date.accessioned2017-04-06T01:36:49Z
dc.date.available2017-04-06T01:36:49Z
dc.identifierLupus, v. 18, n. 10, p. 894-899, 2009.
dc.identifier0961-2033
dc.identifierhttp://hdl.handle.net/11449/71115
dc.identifierhttp://acervodigital.unesp.br/handle/11449/71115
dc.identifier10.1177/0961203309106917
dc.identifier2-s2.0-68949191174
dc.identifierhttp://dx.doi.org/10.1177/0961203309106917
dc.identifier.urihttp://repositorioslatinoamericanos.uchile.cl/handle/2250/892136
dc.descriptionIn recent years, antiphospholipid syndrome (APS) has been increasingly recognised in various paediatric autoimmune and nonautoimmune diseases, but the relatively low prevalence and heterogeneity of APS in childhood made it very difficult to study in a systematic way. The project of an international registry of paediatric patients with APS (the Ped-APS Registry) was initiated in 2004 to foster and conduct multicentre, controlled studies with large number of paediatric APS patients. The Ped-APS Registry is organised as a collaborative project of the European Forum on Antiphospholipid Antibodies and Juvenile Systemic Lupus Erythematosus Working Group of the Paediatric Rheumatology European Society. Currently, it documents a standardised clinical, laboratory and therapeutic data of 133 children with antiphospholipid antibodies (aPL)-related thrombosis from 14 countries. The priority projects for future research of the Ped-APS Registry include prospective enrolment of new patients with aPL-related thrombosis, assessment of differences between the paediatric and adult APS, evaluation of proinflammatory genotype as a risk factor for APS manifestations in childhood and evaluation of patients with isolated nonthrombotic aPL-related manifestations. © The Author(s), 2009.
dc.languageeng
dc.relationLupus
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.subjectAntiphospholipid antibodies
dc.subjectAntiphospholipid syndrome
dc.subjectPaediatrics
dc.subjectphospholipid antibody
dc.subjectantiphospholipid syndrome
dc.subjectdeep vein thrombosis
dc.subjectgenotype
dc.subjecthuman
dc.subjectpediatrics
dc.subjectprevalence
dc.subjectpriority journal
dc.subjectprognosis
dc.subjectregister
dc.subjectrisk assessment
dc.subjectrisk factor
dc.subjectsingle nucleotide polymorphism
dc.subjectsystemic lupus erythematosus
dc.subjectvein thrombosis
dc.subjectAntiphospholipid Syndrome
dc.subjectChild
dc.subjectHumans
dc.subjectRegistries
dc.subjectThrombosis
dc.titleThe Ped-APS registry: The antiphospholipid syndrome in childhood
dc.typeOtro


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