info:eu-repo/semantics/article
Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal
Fecha
2017-09Registro en:
Kranenburg, Laura J.C.; Reerds, Sam T.H.; Cools, Martine; Alderson, Julie; Muscarella, Miriam; et al.; Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal; Karger; Hormone Research in Paediatrics; 88; 2; 9-2017; 127-139
1663-2818
1663-2826
CONICET Digital
CONICET
Autor
Kranenburg, Laura J.C.
Reerds, Sam T.H.
Cools, Martine
Alderson, Julie
Muscarella, Miriam
Magrite, Ellie
Kuiper, Martijn
Abdelgaffar, Shereen
Balsamo, Antonio
Brauner, Raja
Chanoine, Jean Pierre
Deeb, Asma
Fechner, Patricia
German, Alina
Holterhus, Paul Martin
Juul, Anders
Mendonca, Berenice B.
Neville, Kristen
Nordenstrom, Anna
Oostdijk, Wilma
Rey, Rodolfo Alberto
Rutter, Meilan M.
Shah, Nalini
Luo, Xiaoping
Grijpink, Kalinka
Drop, Stenvert L.S.
Resumen
Background: Information sharing in chronic conditions such as disorders of/differences in sex development (DSD) is essential for a comprehensive understanding by parents and patients. We report on a qualitative analysis of communication skills of fellows undergoing training in paediatric endocrinology. Guidelines are created for the assessment of communication between health professionals and individuals with DSD and their parents. Methods: Paediatric endocrinology fellows worldwide were invited to study two interactive online cases (www.espe-elearning.org) and to describe a best practice communication with (i) the parents of a newborn with congenital adrenal hyperplasia and (ii) a young woman with 46,XY gonadal dysgenesis. The replies were analysed regarding completeness, quality, and evidence of empathy. Guidelines for structured assessment of responses were developed by 22 senior paediatric endocrinologists worldwide who assessed 10 selected replies. Consensus of assessors was established and the evaluation guidelines were created. Results: The replies of the fellows showed considerable variation in completeness, quality of wording, and evidence of empathy. Many relevant aspects of competent clinical communication were not mentioned; 15% (case 1) and 17% (case 2) of the replies were considered poor/insufficient. There was also marked variation between 17 senior experts in the application of the guidelines to assess communication skills. The guidelines were then adjusted to a 3-level assessment with empathy as a separate key item to better reflect the qualitative differences in the replies and for simplicity of use by evaluators. Conclusions: E-learning can play an important role in assessing communication skills. A practical tool is provided to assess how information is shared with patients with DSD and their families and should be refined by all stakeholders, notably interdisciplinary health professionals and patient representatives.