Tese
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde
Fecha
2022-06-20Autor
Silva, Júlia Heinz da
Institución
Resumen
Objective: to interpret the cultural modulation of family care for children dependent on
health technology in the different contexts in which they are inserted. Method:
ethnographic study with a qualitative approach. The informants of the study were the
technology-dependent children, their families and people around them, completing ten
general informants and 5 keys. The selection of families occurred intentionally from the
database of the researcher's master's dissertation. Data production completed 300
hours, in a period of 10 months, from June 2019 to April 2020 in Santa Maria. It started
at the families' homes and the researcher was able to accompany them in their places
of conviviality (school, health spaces and community). Participant observation and
ethnographic interviews with field diary records were used, and the genogram and
ecomap were used as collection instruments. For the interpretation of data, the
following phases proposed by ethnonursing were followed: (1) collection, description
and documentation of raw data; (2) identification and characterization of descriptors
and components; (3) patterns and contextual analysis and (4) main themes, research
findings, theoretical formulations and recommendations. Ethical precepts were
respected in accordance with Resolution 466/12 and Resolution 510/16. The study has
been approved by the Research Ethics Committee of the institution with opinion
number 3,319,351. Results: they were divided into two chapters, one dealing with the
organization and family configuration, for the care of the child dependent on health
technology, as well as the available support network. Families need the support of
people beyond the family nucleus to guarantee care and consider the school and
health services as part of this network. The second talks about the limits and
possibilities found in the course of care, where socioeconomic difficulties arise, the lack
of coverage on the part of public policies, mothers as main caregivers, fathers
providers of sustenance, the social space being the space of care , the prejudice that
still exists, the school inclusion of children, the lack of listening. Conclusion: families
of children dependent on health technologies need to carry out cultural modulations to
face the limits they encounter during the course of care and reinvent themselves within
the family configuration and support network to transform these limits into possibilities
to guarantee the quality of care. these children's lives.