Artículos de revistas
Validation of the portuguese simple measure of impact of lupus erythematosus in youngsters (SMILEY) in Brazil
Fecha
2013-02-01Registro en:
Lupus, v. 22, n. 2, p. 190-197, 2013.
0961-2033
1477-0962
10.1177/0961203312470185
WOS:000313733800010
2-s2.0-84872511536
7098310008371632
0000-0002-7631-7093
Autor
University of Medicine
Universidade Estadual Paulista (Unesp)
Universidade Federal de São Paulo (UNIFESP)
Universidade Estadual de Campinas (UNICAMP)
Universidade Federal do Rio de Janeiro (UFRJ)
Universidade do Estado do Rio de Janeiro (UERJ)
Children's Institute
Hospital for Special Surgery
University of Michigan
Institución
Resumen
Background and Objective: Simple Measure of the Impact of Lupus Erythematosus in Youngsters (SMILEY) is a health-related quality of life (HRQOL) assessment tool for pediatric systemic lupus erythematosus (SLE), which has been translated into Portuguese for Brazil. We are reporting preliminary data on cross-cultural validation and reliability of SMILEY in Portuguese (Brazil). Methods: In this multi-center cross-sectional study, Brazilian children and adolescents 5-18 years of age with SLE and parents participated. Children and parents completed child and parent reports of Portuguese SMILEY and Portuguese Pediatric Quality of Life Inventory (PedsQLTM) Generic and Rheumatology modules. Parents also completed the Childhood Health Assessment Questionnaire (CHAQ). Physicians completed the SLE disease activity index (SLEDAI), Physician's Global Assessment of disease activity (PGA) and Systemic Lupus Erythematosus International Collaborating Clinics ACR Damage Index (SDI). Results: 99 subjects (84 girls) were enrolled; 93 children and 97 parents filled out the SMILEY scale. Subjects found SMILEY relevant and easy to understand and completed SMILEY in 5-15 minutes. Brazilian SMILEY was found to have good psychometric properties (validity and reliability), and the child-parent agreement was moderate. Conclusion: SMILEY may eventually be used routinely as a research/clinical tool in Brazil. It may be also adapted for other Portuguese-speaking nations offering critical information regarding the effect of SLE on HRQOL for children with SLE. © The Author(s), 2012.
Materias
Ítems relacionados
Mostrando ítems relacionados por Título, autor o materia.
-
Validation of the portuguese simple measure of impact of lupus erythematosus in youngsters (SMILEY) in Brazil
Moorthy, L. N.; Saad-Magalhães, C.; Sato, Juliana de Oliveira; Len, C. A.; Vasco, M Brandão; Appenzeller, S.; Marini, R.; Oliveira, Sk Feitosa De; Rodrigues, M.; Sztajnbok, F.; Almeida, R Gasparello De; Jesus, A Almeida De; Campos, L. M.; Silva, C. A.; Peterson, Mge; Hassett, A. L.; Weiss, E.; Verma, S.; Dahodwala, M. Q.; Lehman, Tja -
Validation of the portuguese simple measure of impact of lupus erythematosus in youngsters (SMILEY) in Brazil
University of Medicine; Universidade Estadual Paulista (Unesp); Universidade Federal de São Paulo (UNIFESP); Universidade Estadual de Campinas (UNICAMP); Universidade Federal do Rio de Janeiro (UFRJ); Universidade do Estado do Rio de Janeiro (UERJ); Children's Institute; Hospital for Special Surgery; University of Michigan (2013-02-01)Background and Objective: Simple Measure of the Impact of Lupus Erythematosus in Youngsters (SMILEY) is a health-related quality of life (HRQOL) assessment tool for pediatric systemic lupus erythematosus (SLE), which has ... -
Preliminary core sets of measures for disease activity and damage assessment in juvenile systemic lupus erythematosus and juvenile dermatomyositis
Ruperto, Nicolino; Ravelli, Angelo; Murray, Kevin J.; Lovell, Daniel J.; Andersson-Gare, Boel; Feldman, Brian M.; Garay, Stella; Kuis, Wietse; Machado, Claudio; Pachman, Lauren; Prieur, Anne-Marie; Rider, Lisa G.; Silverman, Earl; Tsitsami, Elena; Woo, Pat; Giannini, Edward H.; Martini, Alberto; Bae, Sang Cheol; Balogh, Zsolt; Burgos-Vargas, Ruben; De Cunto, Carmen; De Inocencio, Jaime; Dolezalova, Pavla; Harjacek, Miroslav; Hashkes, Philip; Hofer, Michael; Honkanen, Visa; Huemer, Christian; Huppertz, Hans-Iko; Joos, Rik; Kanakoudi, Florence; Lilleby, Vibke; Melo-Gomes, Jose; Mihaylova, Dimitrina; Nielsen, Susan; Nikishina, Irina; Ozdogan, Huri; Pagava, Kharaman; Reed, Anne M.; Rennebohm, Robert; Romicka, Anna Maria; Rooney, Madeleine; Rumba, Ingrida; Susic, Gordana; Vesely, Richard