Características demográficas, clínicas y farmacológicas de pacientes con epidermólisis bullosa: estudio de corte transversal

Abstract

The recent incidence of diseases considered rare or strange has generated particular interest at the scientific level, tending the development of approaches and analysis to determine its true impact on the community. The present study pretend to make an understanding of correlational descriptive cohort, about a group of 50 children (as) and adolescents with Epidermolysis Bullosa The objectives of deepening research will aim in the contextual framework of disease incidence, etiology, risk factors, diagnosis and prevalence as well as the boarding process on the issue and the contributions made by the means institutionalized level interdisciplinary intervention with patients and their families.