Artículos de revistas
Parents' Experiences Of Having A Baby With Ambiguous Genitalia
Registro en:
Parents' Experiences Of Having A Baby With Ambiguous Genitalia. Walter De Gruyter Gmbh, v. 28, p. 833-838 JUL-2015.
0334-018X
WOS:000358308400017
10.1515/jpem-2014-0457
Autor
Oliveira
Mailme de Souza; de Paiva-e-Silva
Roberto Benedito; Guerra-Junior
Gil; Maciel-Guerra
Andrea Trevas
Institución
Resumen
Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq) Health professionals must be aware of the impact on parents of the birth of children with ambiguous genitalia. This study aimed to analyze the experiences and perceptions of such parents. Parents of 30 children who were evaluated in a reference center for disorders of sex development (DSD) were interviewed. The questionnaire covered the prenatal period, the moment they were told about the disorder, initial management by health professionals, and problems they experienced. Only two cases were detected during pregnancy. The news was usually given to the mother alone by pediatricians. Most parents kept it secret and avoided exposing the baby to the prejudice of others. Parents of children who were referred without sex assignment usually held a personal belief of their child's sex. Previous assignment was based on clinical examination and/or karyotype. Spreading knowledge about DSD could increase awareness of this issue, thus reducing parents' shock and societal stigma. Training of neonatal care teams is required to avoid assignment before evaluation. 28
833 838 Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq) Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq)