Background: The implementation of trauma registries has proven a highly effective means of injury con- trol. However, many low and middle-income countries lack trauma registries. Those that have trauma registries vary ...

Background To describe the factors affecting the incidence of renal replacement therapy (RRT) among children, information from RRT registries is required. We aimed to give an overview of existing pediatric RRT registries ...

There are 7000 identified rare diseases (RD) globally, and the definition of each RD varies from country to country. RD are often chronic, progressive, and frequently life-threatening. It is estimated that almost 400 million ...

Using a rich dataset from a commercial bank in Albania, we utilize the introduction of a public credit registry by the Albanian central bank in January 2008 as a natural experiment to analyze the effect of information ...

Fabry disease is a rare lysosomal storage disorder caused by a deficient activity of the lysosomal enzyme ?-galactosidase A. The Fabry Registry is a global, observational, and voluntary program designed to collect clinical ...

Fabry disease (FD) is an X-linked inborn error of metabolism caused by alpha-galactosidase A deficiency. the Fabry Registry is an ongoing observational database that compiles clinical data on patients with FD. We analyzed ...

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